Calling all Canadians

[Mamabug]

CeeKay --

There used to be a poll feature, that would've been a great way to survey answers from MSWorld members, but it has been disabled.

I suspect that any other way of collecting information might be more tedious and less useful.

~ Faith

[CeeKay7]

Grew up in Alberta, but now live in Vancouver, BC.

According to what I've read, people from the prairie provinces are among those in the world with the highest risks of getting MS. I'm curious if a quick survey could be done on this message board to see where we all grew up?

[jlbbseven]

SK mom of 2 little ones

Just learning the ins and outs of this site - I've been on "Patients Like Me" for quite awhile. Found a link from there to "MS Sucks" and from there to here. Happy to see a Canadian group, as on many topics I have had little in common with the Americans. I also tried MS Watch (I'm new on Copaxone) but there wasn't much activity there.
Hope I get this one figured out - thanks!

[hughbie]

Hi there all! Been a reader for about 2yrs now, and live outside a farming town called Crysler,On.
Deborah, it's always a good idea to check in with the Doc when you fell you have a new symptom!
My wife had to tell me before being dx on Sept '07 that I was stiffen up, stopped breathing for 45seconds, then repeat the whole thing for about 5min at a time (Didn't even know I was doing it)
Now when I wake up, by myself (Wifey couldn't sleep anymore) I know i've had a bad night from the sheets being on the floor LOL and feel as tired as I do when going to bed! Point is Deb, your Doc is your best friend, he/she needs to know, they may find out it isn't the MS! Are you involved with an MS Clinic?

[Deborah Ann]

Hello All
It is 2 am in the morning and i can't sleep.To put it polietly, i am so angry.I only get about 2 to 3 hours sleep a night.What woke me up tonight is the left hand side of my face is numb,never has happened before.I am just wondering if others have had this before.Or should i go get it checked out.

[rlmitchell]

ALBERTA GIRL

Hi everyone,

I'm Rhonda from the Calgary area. I was DX'd in Jan 09 but have had symptoms for at least 6 years. I'm 36 & have 3 wonderful boys.

[prairiegirl]

OMG where to start I am not working anymore and thats so weird. I am still learning what is too much and when to stop. I have days that I feel so good I wont to do everything but if I do I better not have anything the next fews days that has to be done. Every day in a new day with new surprises. Just breathe I tell myself.......I am looking at moving before this coming wither into Halifax closer to my docs and treatment and closer to the MS clinics so I can help out some because my docs dont think I will work full time again too much stress.

I hear ya-I am the same way-on the good days, I go full tilt, so I don't feel like I am wasting the good ones. It's hard trying to figure out what to do. No self-help book can tell you-youhave to figure it out for yourself. It's hard not being able to trust that if you make plans in advance you will be able to follow through. It's a big adjustment.

[Hopper]

I just tuned 38 on Sunday (22nd). Yeah what to do next is the big question. I just stepped back from working outside my house (self employed) but want to keep my hand in, which I can do my computer. I had to do this because my pain specialist said I needed to lower my stress level. I am still adjusting to not being as busy as I was. I am also getting ready to start chemo, so it's probably a good thing that I am not working like I was. I need to look after myself if I am going to have any chance of this treatment benefitting me.

What's it been like for you?

OMG where to start I am not working anymore and thats so weird. I am still learning what is too much and when to stop. I have days that I feel so good I wont to do everything but if I do I better not have anything the next fews days that has to be done. Every day in a new day with new surprises. Just breathe I tell myself.......I am looking at moving before this coming wither into Halifax closer to my docs and treatment and closer to the MS clinics so I can help out some because my docs dont think I will work full time again too much stress.

[274500]

EDMONTON HERE

HI. I AM FROM EDMONTON. ANYBODY ELSE FROM AROUND HERE?

[274500]

HI I NOW USE LYRICA. IT WORKS EVEN BETTER THAN NEURONTIN.

TOM FROM EDMONTON

[kathrina]

NERVE PAIN

I have been taking neurontin for the nerve pain, for the last few years. I take 300mg four times a day,and also baclofen 20mg four times a day for spasms. both this have really helped, hardly any spasms or nerve pain now. best of luck!

[274500]

does anyone here use sativex i have tried everything for my nerve pain. My worst nerve pain is in my head on my right side same exact spots as my two large lesions that left a crater in my brain. Does sativex help and if so can I get it from canada? Please help any suggestions are appreciated
thanks
melissa

Just a hint. Google the word "dirucotide". Help may be on the way. For your nerve pain, have you tried Lyrica? It sure has helped me.

274500
Tom

[prairiegirl]

Prairegirl it was but I am sure others have their stories too, I am 38 and I am trying to fiqure what I am to do and go next.

I just tuned 38 on Sunday (22nd). Yeah what to do next is the big question. I just stepped back from working outside my house (self employed) but want to keep my hand in, which I can do my computer. I had to do this because my pain specialist said I needed to lower my stress level. I am still adjusting to not being as busy as I was. I am also getting ready to start chemo, so it's probably a good thing that I am not working like I was. I need to look after myself if I am going to have any chance of this treatment benefitting me.

What's it been like for you?

[prairiegirl]

Prairiegirl - I'm actually going to UBC MS clinic. I will get the full assessment - Neurologist, Eye doctor, Nurse, Genetic. I don't know how it will differ from what I've already done (it feels like we've already tested everything). But the Neurosurgeon said that he feels this is the source of my problems so "we'll see" I was sort of hoping for a different response - like another idea of what could be making me be like this.... no such luck.

THe not knowing is hard. At the very least, someone is listening enough to want to try and figure it out. That part sometimes requires alot of patience. I hope you will get answers soon.

[Cherrymom]

Prairiegirl - I'm actually going to UBC MS clinic. I will get the full assessment - Neurologist, Eye doctor, Nurse, Genetic. I don't know how it will differ from what I've already done (it feels like we've already tested everything). But the Neurosurgeon said that he feels this is the source of my problems so "we'll see" I was sort of hoping for a different response - like another idea of what could be making me be like this.... no such luck.