Calling all Canadians

[Hopper]

Hey

Welcome Hopper! *waves from the west coast*
That doesn't sound like it was very pleasant. I hope you are doing better now!

Prairegirl it was but I am sure others have their stories too, I am 38 and I am trying to fiqure what I am to do and go next.

[nepcan]

Hi from Canada

I'm 48 with RR turned into SP but my EDSS scale went from 6.5 in 2000 to 2.5 2005. Healthy living contibuted to the improvement.

I live in Ottawa, Ontario Canada

[three4meandyou]

sativex

does anyone here use sativex i have tried everything for my nerve pain. My worst nerve pain is in my head on my right side same exact spots as my two large lesions that left a crater in my brain. Does sativex help and if so can I get it from canada? Please help any suggestions are appreciated
thanks
melissa

[prairiegirl]

Hi its so good to have found more Canadians.I was dx dec 2007 after a 31/2 months of laying in the hospital. I am looking for others to chat with that have this crazy life like mine.

Welcome Hopper! *waves from the west coast*
That doesn't sound like it was very pleasant. I hope you are doing better now!

[prairiegirl]

I'm Lori. I have issues. I was diagnosed 95 days ago. I'm 34. I'm married; no kids, pets or houseplants. I live in The People's Republic of East Van, British Columbia.

I have only had MS symptoms for 9 months, and I have RRMS with residual deficits.

I don't know how I'm dealing with this exactly, but some days are worse than others.

I've had two mitoxantrone treatments, I go for my third on April 9. I'm better than I was in January, but I'm not even close to where I was a year ago. If I can't get back to that level of ability, I will have to seriously reconsider everything about my life.

Yesterday I vacuumed for the first time since December. If you knew about my obsession with Flylady routines, you would know that doing that was a minor triumph.

Hey just to let you know, there is an under 40's MS group that meets 1x month at the MS offices in BBY. (On the Skytrain route-Metrotown.) If you are interested, call the MS office and they will hook you up. It's a nice group of women and we are all about the same place-about 1 year give or take since diagnosis.

I am just doing the pre-chemo workup (had my muga yesterday) and will be doing the same med as you. How are you doing? Anything I should know? I will be having my treatments at BBY general, probably about mid-April, as I have a trip planned shortly.

I know what you mean about re-evaluating your life. I've had to do a bit of that myself.

Anyway, waving to you from the 'burbs.

[Hopper]

Hi fellow Canadians and Maritimers

Hi its so good to have found more Canadians.I was dx dec 2007 after a 31/2 months of laying in the hospital. I am looking for others to chat with that have this crazy life like mine.

[prairiegirl]

If it makes you feel any better, Burnaby is really good. I was just there this morning in the nuclear medicine depatment and they were very kind to me. Most people going there for MUGA scans have cancer, so they were very gentle in asking me what kind of cancer I had. *laughs* they were some surprised when I told them the chemo I was going to get is for MS. They said I was their first MS MUGA patient. go figure!

Anyway, I am happy with the standard of care I have at BBY and I hope you will be too. Do you know who you will be seeing yet?

[Cherrymom]

MS clinic in June

Well I've decided to wait and go the MS clinic in June - the other Neurologist would be starting over anyway and at least this is starting with people who might be able to get answers.

I had a bad fall yesterday and sprained my ankle (my leg gave out) I got all the paperwork for UBC and it was a bit overwhelming. I guess you just keep pressing forward.

[StarraStarra]

Hey now

I'm Lori. I have issues. I was diagnosed 95 days ago. I'm 34. I'm married; no kids, pets or houseplants. I live in The People's Republic of East Van, British Columbia.

I have only had MS symptoms for 9 months, and I have RRMS with residual deficits.

I don't know how I'm dealing with this exactly, but some days are worse than others.

I've had two mitoxantrone treatments, I go for my third on April 9. I'm better than I was in January, but I'm not even close to where I was a year ago. If I can't get back to that level of ability, I will have to seriously reconsider everything about my life.

Yesterday I vacuumed for the first time since December. If you knew about my obsession with Flylady routines, you would know that doing that was a minor triumph.

[mtstan]

Hi Cherrymom,
I haven't been here for a while but came back on here tonight. I am also in BC and a Mom I hope everything goes ok for you with your appt. My neuro is at the MS Clinic at UBC and they are awesome there. Let us know it all goes.
Take care

[Cherrymom]

Ya prairiegirl - I'm in BC. I still haven't heard back from him (the Neurosurgeon) and then my GP's office called with a new Neurologists appointment so now I don't know what to do. I think I'll contact the Neurosugeon and see what he says about this Dr. I guess... I don't really know.

[sidneygirl]

Hi Canadian newbies

Welcome Leesa! Sorry to have to meet you this way, but very nice to meet you .
When the questions start coming, please don't be afraid to ask. Everyone here is very kind, understanding and gentle when need be.
Bye for now,
Connie in Sidney BC

[lessaleew]

Just DXed from Halton

Hi
I am so new I don't even know the questions never mind the answers. All I do know is i physically hurt, get dizzy, and confused when stressed. There seems to be a lot to learn so I will be hanging out for a while.

[prairiegirl]

After being told you do not have MS (2 or 3 lesions), numbness, tingling, mobility issues, TN. I had a negative LP (will never do that again). With a referral to a Neurosurgeon for the ongoing TN - he tells me (after reviewing the same reports) that he wants me to go to the MS Clinic and see a MS Neurologist. This journey has only been a couple years for me and I left for the past 6/8 months but it keeps coming up so I guess we'll find out what they say at the clinic.

Hey Cherry, aren't you in BC? I am glad you will see an MS specialist. They seem to know what they are looking at fairly quickly. I hope that you get some answers, though, I am sad that something is wrong with you. (You know what I mean.) Let's hope they can figure it out and help you.
*hugs*

[Cherrymom]

Back on

After being told you do not have MS (2 or 3 lesions), numbness, tingling, mobility issues, TN. I had a negative LP (will never do that again). With a referral to a Neurosurgeon for the ongoing TN - he tells me (after reviewing the same reports) that he wants me to go to the MS Clinic and see a MS Neurologist. This journey has only been a couple years for me and I left for the past 6/8 months but it keeps coming up so I guess we'll find out what they say at the clinic.