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  • littlebelle
    replied
    Originally posted by Mistigris View Post
    Hi Littlebelle:

    We've chatted. I'm in Richmond Hill a little south of you. My thoracic MRI was clear - limbo continues. Seeing my regular neuro this Friday (13th - how appropriate).
    Yes we saw the same Toronto Neuro. So sorry your appointment did go well. When I saw him it was not just for MS but to figure out what was causing the problems I was having. At first he thought it could be a rare from of lupus of the spine. But after testing said nope all clear there.

    He told me to be patient I was a difficult case. And he is used to getting tough cases. I am so sorry he was not good for you

    Leave a comment:


  • littlebelle
    replied
    Originally posted by misshayleesmom View Post
    If you see Dr. Marchetti at St. Mike's he's very nice but he didn't even look at my MRI while i was there..he only read the report and even then didn't order any additional tests. He called me at home 3 days later about my MRI. So i don't know how confidant i would feel about him..
    Oh sorry to see you are having so much difficulty still. So what actually did Dr. Marchetti do if he did not look at your MRI's. Who ordered the tests him or was just reading what was sent to him. Seems like a waste of time did he at least do a neuro examine. And awful long way to go for him to do nothing.

    Sure hopes it gets better

    Leave a comment:


  • Mistigris
    replied
    Hi Littlebelle:

    We've chatted. I'm in Richmond Hill a little south of you. My thoracic MRI was clear - limbo continues. Seeing my regular neuro this Friday (13th - how appropriate).

    Leave a comment:


  • misshayleesmom
    replied
    Nope,

    Went for mri and blood work. All neg of course.
    Doc says its neurological, but won't do anything else.
    Gave me med for "migraines" said it caused my vision problems.

    I've never had migraines, just my eye hurts.. then i can't see.

    Optholmologist says its neurological.

    I had a reaction to the migraine med.. i feel like a guinea pig..

    I broke my foot in may, so doc knows about this.

    He's frustrated.. cause as he says "he doesn't know what more to do for me.. you've had all the tests.. you've seen a specialist.. you've seen a neuro (ARTS) .

    So right now as i stand he will only do mri's bi-yearly and only yearly if sx get worse.

    Going down the stairs breaking a foot , i thought would at least put up a red flag since i have trouble feeling the stairs.. i already told him a year ago i can't feel the stairs.

    I'm just taking it day by day, feeling not too bad lately.
    I'm getting cast off on Thursday. I can't wait!!

    Unfortunately, I think the only help i'll get is when something really bad happens like it did for yourself..
    that's what scares me.. but i have no other choice.

    You know how hard it is to find a doc around here and even then, if all tests are clear i'm afraid i'll just get the same treatment.

    If you see Dr. Marchetti at St. Mike's he's very nice but he didn't even look at my MRI while i was there..he only read the report and even then didn't order any additional tests. He called me at home 3 days later about my MRI. So i don't know how confidant i would feel about him..

    With you having lesions.. hopefully you'll get some answers..

    Good luck and keep me posted.

    Cindy

    Leave a comment:


  • littlebelle
    replied
    Originally posted by misshayleesmom View Post
    Hi Littlebelle!

    How have you been lately?
    How is St. Mike's working out for you?

    Same old same old here.

    Have a nice day..
    Cindy

    Actually this is one of my good weeks I think the steriods really helped.

    I go back tomorrow my file got moved from the Neuro office to the MS Clinic not sure who I am seeing there. Will let you know tomorrow.

    So how is it going with you. Any luck getting some help?

    Leave a comment:


  • littlebelle
    replied
    Originally posted by Rushy View Post
    Nice to see someone else from Canada. I am a 45 yr old female diagnosed in July of 2006, Beta Babe since August 2006.

    I live in Cobourg, Ont. about 100 km east of Toronto.
    Wow I know a person in Corborg. Yup my friend Carrie lives there small world.

    Leave a comment:


  • misshayleesmom
    replied
    Hi Littlebelle!

    How have you been lately?
    How is St. Mike's working out for you?

    Same old same old here.

    Have a nice day..
    Cindy

    Leave a comment:


  • Rushy
    replied
    Fellow Canuck

    Nice to see someone else from Canada. I am a 45 yr old female diagnosed in July of 2006, Beta Babe since August 2006.

    I live in Cobourg, Ont. about 100 km east of Toronto.

    Leave a comment:


  • littlebelle
    started a topic Calling all Canadians

    Calling all Canadians

    I am sure there are many out there. I have met a few. So Where in Canada are you from? If you do not want to say that is fine. Just pop in and say Hello.


    I think since our insurance issues and medical supplies issues are different from our US friends we should have a place to discuss how our system works. What trials we have going etc.

    Looking forward to meeting you all

    I live in Barrie Ontario 100 KM from Toronto.
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