Ive been dx for 20yrs. My husband and I have been togther for 9yrs and married for 4yrs now. I have had flares but not bad ones, almost not even noticeable. October of last year and December of last year I had HUGE flares which have left me with permanent disability in my legs, not to mention constant tingling, on and off numbness, constant spasms and tremors.
My dh is always grabbing MS info brochures, etc. but he always hands them directly to me. He says he's getting them for me. He never reads them. He is so confused on what MS is and what it can do, how disabling it can be, etc. I try to talk to him about it but he constantly tells me how he's just worried about taking care of me (financial) and making my life easier so I dont struggle so much.
I think how fast I became disabled blind sided him (and me too). He has become alittle distant with me since my flare ups, and he says its because he doesnt want to hurt me more than I already am (spasms and pain).
I guess Im trying to figure out how I can help him feel calmer or more at peace with whats happening. Maybe thats not the right wording, but hopefully someone will understand what Im trying to say. He does everything because im so limited in what I can do anymore and he's wearing down.
My dh is always grabbing MS info brochures, etc. but he always hands them directly to me. He says he's getting them for me. He never reads them. He is so confused on what MS is and what it can do, how disabling it can be, etc. I try to talk to him about it but he constantly tells me how he's just worried about taking care of me (financial) and making my life easier so I dont struggle so much.
I think how fast I became disabled blind sided him (and me too). He has become alittle distant with me since my flare ups, and he says its because he doesnt want to hurt me more than I already am (spasms and pain).
I guess Im trying to figure out how I can help him feel calmer or more at peace with whats happening. Maybe thats not the right wording, but hopefully someone will understand what Im trying to say. He does everything because im so limited in what I can do anymore and he's wearing down.
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