Hello everyone! I have been reading around on here for a week or so. I was just diagnosed on Friday 2/12/16. It all happened very fast. I had an acute onset of symptoms where I was numb from the waist down. Over the next month, I deteriorated very quickly. Everything (testing, etc) got rushed and from start to dx, was a little over a month.
I did my 3-day Solu Medrol over the weekend, on the Prednisone taper pack now. I've had my mental breakdown thanks to the steroids turning on the water works and now I'm just kind of here. Like all newbies, I am scared to death. I fear for my future, I fear for my kids future....I fear the unknown.
Right now, symptoms (thankfully) are minimal. The L'Hermitte's sign is very prominent and the bands across the bottom of my feet are unpleasant, but I'm thankful for now that's all it is. I don't meet with the MS specialist until March 11th, so my DMD meds won't be started before that
Of course, I am fighting the "hysteria" of the steroids and flip flopping from "get all my ducks in a row right this moment for the future" and "chill out and take one day at a time". So, that's my story. I just wanted to say hello and that I am very happy to find a place to "fit in".
I did my 3-day Solu Medrol over the weekend, on the Prednisone taper pack now. I've had my mental breakdown thanks to the steroids turning on the water works and now I'm just kind of here. Like all newbies, I am scared to death. I fear for my future, I fear for my kids future....I fear the unknown.
Right now, symptoms (thankfully) are minimal. The L'Hermitte's sign is very prominent and the bands across the bottom of my feet are unpleasant, but I'm thankful for now that's all it is. I don't meet with the MS specialist until March 11th, so my DMD meds won't be started before that
Of course, I am fighting the "hysteria" of the steroids and flip flopping from "get all my ducks in a row right this moment for the future" and "chill out and take one day at a time". So, that's my story. I just wanted to say hello and that I am very happy to find a place to "fit in".
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