Hello all. Is there room for one more?

[wholenewworld]

Hello everyone! I have been reading around on here for a week or so. I was just diagnosed on Friday 2/12/16. It all happened very fast. I had an acute onset of symptoms where I was numb from the waist down. Over the next month, I deteriorated very quickly. Everything (testing, etc) got rushed and from start to dx, was a little over a month.

I did my 3-day Solu Medrol over the weekend, on the Prednisone taper pack now. I've had my mental breakdown thanks to the steroids turning on the water works and now I'm just kind of here. Like all newbies, I am scared to death. I fear for my future, I fear for my kids future....I fear the unknown.

Right now, symptoms (thankfully) are minimal. The L'Hermitte's sign is very prominent and the bands across the bottom of my feet are unpleasant, but I'm thankful for now that's all it is. I don't meet with the MS specialist until March 11th, so my DMD meds won't be started before that

Of course, I am fighting the "hysteria" of the steroids and flip flopping from "get all my ducks in a row right this moment for the future" and "chill out and take one day at a time". So, that's my story. I just wanted to say hello and that I am very happy to find a place to "fit in".

[Mamabug]

Always room for one more

My onset also happened very quickly. My dx was not so quick; was difficult for doctors to determine the cause of my symptoms.

Hang in there; you'll find a good group of people here to support you.

[Karenkay]

My diagnosis was pretty quick too... a couple weeks I've been living with M S over 25 yrs. It has only been in the last few years that it has really put a cramp in my life. Well, a little more than a cramp. lol

You'll find your way through, we all do. Take care.

[Seasha]

Hi Wholenewworld and welcome!

I'm sorry about your diagnosis, but you've come to a welcoming and safe place here. Being fearful for your future and the unknown is common enough and even healthy people go through this! Gain as much knowledge about MS as you can- either here or through trusted MS sites. NMSS (http://www.nationalmssociety.org/) and Multiple Sclerosis Society of America (http://www.mymsaa.org/) have lots of good information. I would advise you to stay away from Dr. Google!

I was in limbo for 10 years, but my official dx happened within 2 days. At that time, years ago, I was given a 5 day course of Solu Medrol with no taper and I thought I was dying because of the side effects- talk about being fearful!! I was rx Valium to ease the panic attacks. I wish I had know about MSWorld then.

I hope you feel at home here and ask as many questions as you need!
Take care

[hunterd]

HI WHOLENEWWORLD, WELCOME TO MS WORLD!
Unfortunately, I cannot count myself as one of the people that received a quick diagnosis. Ask about the questions that you want to here, we will be more than happy to provide answers. Our members are not only supportive, they are also quick to reply to questions if they have experience with what ever you are asking about.
I can only imagine how many questions you have in your mind right now. MS is different for every individual, so it is extremely hard to diagnose. There are many other illnesses and diseases that mimic MS.
Towards the top of the page right underneath where you can choose your font size is a link (called MSWorld centers) that gives you the option of choosing and any of our four different centers, they all have information that may be of use to you. Also, we have a chat room that open 24/7 EST, and there is a scheduled chat every night at 8 PM (here is a direct link to the chat schedule http://www.msworld.org/community/cha...hat-room-info/).
I wish you the best luck!

[wholenewworld]

Thank you so much everyone!! I appreciate the warm welcome! It is nice to have a place where there are other people like me, who have been through it or are going through it and understand. I am full of questions...tons and tons! I have made the Dr. Google mistake for the last two weeks and it has drove me insane! Thank you for the info on the live chat! I am still kind of in the brain fog due to still being on the Prednisone, so I apologize if I can't address each person individually.

I'm sorry for those of you who had to spend time in limbo. That's awful and I cannot even imagine how you all dealt with it.

I am going to try to snap out of my fog and hope to be able to join the chat tonight! Thank you for all the links!!

[Jules A]

Of course, I am fighting the "hysteria" of the steroids and flip flopping from "get all my ducks in a row right this moment for the future" and "chill out and take one day at a time".

Hi and welcome! Unfortunately there is always room for one more, I wish we could reach our limit and then no more MS diagnoses would be allowed to be handed out.

This made me smile because the "get all my ducks in a row right this moment for the future" is the only thing that got me through the first few months with a shred of sanity and that mantra has definitely kept me focused over the last 11 years, lol. I can hardly believe its been that long.

Keep us posted and hang in there.