Hi! My name is Jacqui and I'm new here. I was diagnosed with MS in March 2012 but have had symptoms since 1990-ish.
On a good day MS affects my balance and my ability to think. On a bad day MS affects everything about my life. For me the hardest thing about MS has been the cognitive problems.
I had pneumococcal meningitis when I was 3. This gave me problems with my hearing and my learning ability. I worked extremely hard all my life to get my brain power where I wanted it and now MS is taking it away from me.
I am having to work longer and harder than ever before and I hate it! I try to always keep a positive attitude but sometimes I can't.
If I start getting too down I remind myself that at least I can still work and learn, maybe not as fast as I once could, but I can still do it. The really scary thing is my neuro, who didn't know me pre MS says that cognitive problems aren't an issue for me. That's BS! Things I used to be able to do in my sleep require intense concentration and effort. People who knew me pre MS can see a huge difference. I miss being a quick thinker and a fast learner.
MS is teaching me patience. I have to learn to be patient with myself and give myself extra time to do things. I used to be able to get up in the morning and be able to get out of the house in 30 min. Now, it takes 2 hrs.
MS has taught me to appreciate more of the little things in life. Like the ability to enjoy the sun on my face on a cool day. My sister can't enjoy that. She has Lupus and if she's out in the sun for more than 5 minutes it throws her into an attack.
I have learned it's o.k. to ask for help if I need it. Receiving help is a blessing to me but, it's also a blessing to the person giving the service.
I ramble way too much. Anyway I look forward to learning and helping where I can on this site.
Jacqui
On a good day MS affects my balance and my ability to think. On a bad day MS affects everything about my life. For me the hardest thing about MS has been the cognitive problems.
I had pneumococcal meningitis when I was 3. This gave me problems with my hearing and my learning ability. I worked extremely hard all my life to get my brain power where I wanted it and now MS is taking it away from me.
I am having to work longer and harder than ever before and I hate it! I try to always keep a positive attitude but sometimes I can't.
If I start getting too down I remind myself that at least I can still work and learn, maybe not as fast as I once could, but I can still do it. The really scary thing is my neuro, who didn't know me pre MS says that cognitive problems aren't an issue for me. That's BS! Things I used to be able to do in my sleep require intense concentration and effort. People who knew me pre MS can see a huge difference. I miss being a quick thinker and a fast learner.
MS is teaching me patience. I have to learn to be patient with myself and give myself extra time to do things. I used to be able to get up in the morning and be able to get out of the house in 30 min. Now, it takes 2 hrs.
MS has taught me to appreciate more of the little things in life. Like the ability to enjoy the sun on my face on a cool day. My sister can't enjoy that. She has Lupus and if she's out in the sun for more than 5 minutes it throws her into an attack.
I have learned it's o.k. to ask for help if I need it. Receiving help is a blessing to me but, it's also a blessing to the person giving the service.
I ramble way too much. Anyway I look forward to learning and helping where I can on this site.
Jacqui
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