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Gilenya day 4 and a big thanks!

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    #1

    Gilenya day 4 and a big thanks!

    I first wanted to say thanks to everyone on here that responded to my first post especially Just a small town girl she helped me decide about Gilenya!

    I just wanted to say...I am finally on and other than boredom my observation went ok. My iPhone helped but wow it was like work without being paid. I wanted to follow my neuro around in a white coat so I can hear people and their issues, but he would not let me...can you imagine?

    So this is day 4 and oddly enough I feel good and not to jinx it better than before. My main symptoms have been off balance (for years) and in bad heat I get hazy vision and weak but that seems better so far. That could be mental but I will take it! The only thing I have got and it started last night is my heart seems to be racing like I am on speed. My pulse is normal and I will get my first blood tests next week. I heard this med can slow your heart down but speed it up??? Anyone else get this?
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    #2
    I remember seeing an old post with someone else who felt this way. I don't remember it precisely though. It might be worth scanning through the threads, especially if no one responds.

    I'm glad your observation went well and hope everything works out for you!

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      #3
      Thank you...day 11 and all well (I think)!

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        #4
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        I'm happy everyone is feeling better on this med cause I start next week and it HELPS so much knowing it's a good choice thus far and I look forward to feeling as good as you all and look forward to a GREAT feedback. THANK YOU and BE WELL.

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          #5
          Hello msMild...my main neuro did not recommend Gilenya I think because it was new. I been on for 15 days and went to a specialist Tuesday and he said that he would have recommended Gilenya to me and I made a good choice. My first few days it was like a miracle drug (my minor off balance GONE) now I do feel better just not as good but I am glad it seems to be working. I will know more after my first blood tests next week but as for the day to day it seems to be working for me.

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