I first wanted to say thanks to everyone on here that responded to my first post especially Just a small town girl she helped me decide about Gilenya!
I just wanted to say...I am finally on and other than boredom my observation went ok. My iPhone helped but wow it was like work without being paid. I wanted to follow my neuro around in a white coat so I can hear people and their issues, but he would not let me...can you imagine?
So this is day 4 and oddly enough I feel good and not to jinx it better than before. My main symptoms have been off balance (for years) and in bad heat I get hazy vision and weak but that seems better so far. That could be mental but I will take it! The only thing I have got and it started last night is my heart seems to be racing like I am on speed. My pulse is normal and I will get my first blood tests next week. I heard this med can slow your heart down but speed it up??? Anyone else get this?
I just wanted to say...I am finally on and other than boredom my observation went ok. My iPhone helped but wow it was like work without being paid. I wanted to follow my neuro around in a white coat so I can hear people and their issues, but he would not let me...can you imagine?
So this is day 4 and oddly enough I feel good and not to jinx it better than before. My main symptoms have been off balance (for years) and in bad heat I get hazy vision and weak but that seems better so far. That could be mental but I will take it! The only thing I have got and it started last night is my heart seems to be racing like I am on speed. My pulse is normal and I will get my first blood tests next week. I heard this med can slow your heart down but speed it up??? Anyone else get this?
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