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CHANGES AT MSWORLD - MSWORLD'S CLOSURE

We began with a mission and purpose to help others living with MS.

We were excited to get going!

And hit a few bumps along the way…

However, in all seriousness, we remain grateful for our amazing volunteers, members & all who have made MSWorld a valuable resource for all!

July 10, 2024, we celebrated the goodness of these past 28 years. With a heavy heart, we will be ending our services.

We need a financial miracle to keep going forward.

We thank all for your support.

MSWorld's website will close on October 16, 2024.

“I personally want to wish all of you the guidance to find this type of support, as so many do here. Also, my prayers and love extends beyond my understanding. It has been a pleasure to steward this journey.”

God Bless you, Kathleen

Kathleen Wilson
Founding President
❤️

we leave knowing that
we did our best and
stayed true to our mission and purpose.


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question re rx copay help

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    question re rx copay help

    Has anyone had experience getting help with prescription copays? I am working and paying my own insurance premiums however our copays went to 20% and I can't afford most of my MS meds I take daily for symptoms. Thanks.

    #2
    I would suggest contacting the drug companies. They have assistance programs available to help pay with the meds.

    Good luck - I have a feeling that you are not alone in this. Many are feeling the crunch.

    Comment


      #3
      When my insurance switched to another prescription drug plan, my copay for Ampyra went from $40 to $200 a month. I called the company, and they were great about paying the difference. However, it did take some time (at least a month) so plan accordingly. I've been with them since last July, and I've had no problem whatsoever.

      Comment


        #4
        rx copay help...discouraged

        I take 10 different meds. One of my generic drugs used to cost $5.00. This year it costs $55.00.
        I guess this is an example of what seems the more I try to push myself and keep working through my symptoms the more I get discouraged about it. I will make phone calls tomorrow while on my 30 minute lunch. Wish me luck!

        Comment


          #5
          rx copay help...discouraged

          I take 10 different meds. One of my generic drugs used to cost $5.00. This year it costs $55.00.
          I guess this is an example of what seems the more I try to push myself and keep working through my symptoms the more I get discouraged about it. I will make phone calls tomorrow while on my 30 minute lunch. Wish me luck!

          Comment


            #6
            Tecfidera has a $15,000 co pay assistance program per year

            Comment


              #7
              The drug companies are a great resource.

              Here's an agency that might be able to help.

              Chronic Disease Fund- 972-712-0201 or 877-968-7233; website is http://www.cdfund.org/ and their e-mail is info@cdfund.org

              They provide assistance to those under-insured patients who are diagnosed with chronic or life altering diseases that require the use of expensive, specialty therapeutics. MS is one of the diseases they cover.

              Not sure if this will help you but it might be worth a try.
              Good luck!
              PPMS: Dx 9/13 by local neurologist; confirmed by 2 ms specialists in fall/winter 2013-14.
              Meds: Rapaflo, Neurontin, multi-vitamin, calcium, baby aspirin, blood pressure medicine. The list keeps increasing as the neuro tackles each symptom.

              Comment


                #8
                For my job we use needymeds.org. I've heard about CDF before, but haven't used it personally.

                Comment


                  #9
                  Check with the mfg since they want you on their drugs. I'm on two and when I switched insurance plans Jan 1st my copay went way up. I'm now getting assistance for both (Aubagio and Ampyra).

                  Comment


                    #10
                    My husband gets help for our co-pay and deductible for both Tysabri and Ampyra. Contact the drug companies and see what they will offer. He would be unable to continue these drugs without help from them.
                    Husband Dx'd in 2006. Currently on Tysabri, Gabapentin, Ampyra, Baclofen..

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