My mom calls them sea legs…

[YouBeingMe]

I’ve been trying to succinctly describe to ppl how MS makes me feel. I’ve finally got it: have you ever been camping or visiting a lake and stand in a small, flat aluminum fishing boat? That wobbliness is what I feel 98.8 % of the time. I got let go from my job on Monday, so my husband now says I retired. I’m just tooo young to retire but I just can’t go job hunting again. Nobody wants one such as me. I’m just having to adjust.

[oceanpride]

The funny thing most of my life spent on board a fishing vessel I didn’t notice because all the time I was hanging on and always trying to balance… everybody did. Only on shore I knew something wasn’t right.
I thought my left hand issues was from tugging on too many ropes. Now if I went I’m sure I’d be seasick.
But I know what you are describing well.
LOL I would never risk standing up in a small aluminum boat now.

[KoKo]

Hello YouBeingMe!

I’ve been trying to succinctly describe to ppl how MS makes me feel. I’ve finally got it: have you ever been camping or visiting a lake and stand in a small, flat aluminum fishing boat? That wobbliness is what I feel 98.8 % of the time

I have the same sensation! Very annoying and disconcerting, to say the least.

[YouBeingMe]

It’s so good to know it’s not just me lol

[YouBeingMe]

The funny thing most of my life spent on board a fishing vessel I didn’t notice because all the time I was hanging on and always trying to balance… everybody did. Only on shore I knew something wasn’t right.
I thought my left hand issues was from tugging on too many ropes. Now if I went I’m sure I’d be seasick.
But I know what you are describing well.
LOL I would never risk standing up in a small aluminum boat now.

Lol. I definitely wouldn’t try standing in a fishing boat now either those fish are safe from me hehe

[Kimba22]

Know the feeling, both preMS after going boating with an uncle in the ocean and now from MS. This symptom has gotten better for me than it used to be, but every once in awhile it still flares up. MS can cause dizziness and vertigo.

For several months after my diagnosis it was getting worse an worse. It would get so bad alI could do was lay down and wait for it to pass. Not a good thing when you have a young toddler!

I kept a journal of dates, times, and duration of my episodes. The neuro I had at the time was baffled why it was getting so bad, and even sent me for an electroencephalogrm (EEG). I finally made the connection my symptoms started getting worse after starting one of the antispasmodic drugs (Tizanidine), and were worsening every time it was increased. I can finally tolerate the drug without any problems, but that is after years of slowly titrating the dose.

I've also had vertigo from MS. Both aren't fun.

Talk to your doctor. PT can help retrain your balance, and there are also some medications that can help.

Best of luck finding relief!

Here are some links for you ~

https://m.youtube.com/watch?v=p0rGom6hWGo

https://www.nationalmssociety.org/Sy...ss-and-Vertigo

https://www.healthcentral.com/articl...izziness-in-ms
https://my.clevelandclinic.org/healt...rehabilitation

https://www.msworld.org/forum/forum/...g-ship-feeling

[KoKo]

Great info at the links provided. Thank you Kimba!