I’ve been trying to succinctly describe to ppl how MS makes me feel. I’ve finally got it: have you ever been camping or visiting a lake and stand in a small, flat aluminum fishing boat? That wobbliness is what I feel 98.8 % of the time. I got let go from my job on Monday, so my husband now says I retired. I’m just tooo young to retire but I just can’t go job hunting again. Nobody wants one such as me. I’m just having to adjust.
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My mom calls them sea legs…
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The funny thing most of my life spent on board a fishing vessel I didn’t notice because all the time I was hanging on and always trying to balance… everybody did. Only on shore I knew something wasn’t right.
I thought my left hand issues was from tugging on too many ropes. Now if I went I’m sure I’d be seasick.
But I know what you are describing well.
LOL I would never risk standing up in a small aluminum boat now.It was one agains't 2.5million toughest one we ever fought.
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Hello YouBeingMe!
Originally posted by YouBeingMe View PostI’ve been trying to succinctly describe to ppl how MS makes me feel. I’ve finally got it: have you ever been camping or visiting a lake and stand in a small, flat aluminum fishing boat? That wobbliness is what I feel 98.8 % of the time
PPMS for 26 years (dx 1998)
~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~
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Originally posted by oceanpride View PostThe funny thing most of my life spent on board a fishing vessel I didn’t notice because all the time I was hanging on and always trying to balance… everybody did. Only on shore I knew something wasn’t right.
I thought my left hand issues was from tugging on too many ropes. Now if I went I’m sure I’d be seasick.
But I know what you are describing well.
LOL I would never risk standing up in a small aluminum boat now.
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Know the feeling, both preMS after going boating with an uncle in the ocean and now from MS. This symptom has gotten better for me than it used to be, but every once in awhile it still flares up. MS can cause dizziness and vertigo.
For several months after my diagnosis it was getting worse an worse. It would get so bad alI could do was lay down and wait for it to pass. Not a good thing when you have a young toddler!
I kept a journal of dates, times, and duration of my episodes. The neuro I had at the time was baffled why it was getting so bad, and even sent me for an electroencephalogrm (EEG). I finally made the connection my symptoms started getting worse after starting one of the antispasmodic drugs (Tizanidine), and were worsening every time it was increased. I can finally tolerate the drug without any problems, but that is after years of slowly titrating the dose.
I've also had vertigo from MS. Both aren't fun.
Talk to your doctor. PT can help retrain your balance, and there are also some medications that can help.
Best of luck finding relief!
Here are some links for you ~
https://m.youtube.com/watch?v=p0rGom6hWGo
https://www.nationalmssociety.org/Sy...ss-and-Vertigo
https://www.healthcentral.com/articl...izziness-in-ms
https://my.clevelandclinic.org/healt...rehabilitation
https://www.msworld.org/forum/forum/...g-ship-feeling
Kimba
“When you change the way you look at things, the things you look at change.” ― Max Planck
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