Narrowed down to RRMS - Own It!!

[stoshooo]

*sigh* so my neuro appointment concluded with a final, medical-history-ensuing diagnoses of Remitting Relapsing Multiple Sclerosis. My initial diagnosis three weeks ago was "Multiple Sclerosis of Brain Stem" - which was basically the vague interpretation while my MS Specialist concluded her case study of me. I left feeling relieved yet with newfound fears...

A nurse will be coming by to show me how to give myself shots of Novatrone - I am on Trileptal for my "ms hug" and parasthesia for the next several months...and I'm working on an 18-day taper Prednisone pack. What a change of events in 2013!! lol

I don't see her again for three months - so I guess now it is just time to manage it, get this flare under control if possible, and get back to work!! I was told that it is entirely possible for several months to go by before my symptoms disappear - there is just no telling - so I am also mentally preparing myself to get on with things with half my body numb. It's cool - I can dig it!!

For those of you (us) that have been recently diagnosed or are in limbo land indefinitely, here is my suggestion:

Own it - do not let it own you...

[ghostgirl]

Good. At least now you have the dx.

My half numb body took awhile but got down to just a mostly numb hand after my first flare. It wasn't so bad. Here's hoping you get it all back.

[22cyclist]

Stoshoo: I have most of my lesions in the brainstem too. Bad place for them to be. I went through several drugs, and finally I am on Tysabri. It is a wonderful change from the rest. Aside from the risks, I feel great on Ty! It can't give me all of my strength back, but it does give me a little boost every month, and I will take that! Last MRI showed only one new lesion, and it was a small one at that. I was collecting them like flies before.

I hope your meds will work for you too.
Best wishes
Lisa
Moderation Team

[stoshooo]

Good. At least now you have the dx.

My half numb body took awhile but got down to just a mostly numb hand after my first flare. It wasn't so bad. Here's hoping you get it all back.

Hey when you say a while...how long we talkin'? No seriously though, just curious... I'll take a numb hand for eternety over this for sure!

[ghostgirl]

Well... I'm not sure you can go by me. My first neuro was an idiot and I was only on low dose steroids. But, let me think, I saw him in June and I'd say that by the beginning of Aug. I was as good as I was going to get after that flare. It was a slow process. Over each week I would notice that I could feel my sock or my right leg no long felt weird to put lotion on etc.

It really is amazing what you get used to. I remember thinking the same thing actually, a numb hand isn't so bad. I can still use it, I just really have to watch it. I also sleep with a wrist brace on otherwise my hand is useless in the morning for about an hour. It's from how I sleep.

If you have any other questions please feel free to ask.
I've had another flare since the first and it changed things but that doesn't mean that's how it will go for you.

[gomer]

Numbness came to part of my left hand years ago. Its still there and since I have no loss of use/function I tollerate it no problem, could be jmuch worser.

Gomer Sir Falls-a-lot

[Whimpurr]

Just diagnosed myself on Feb. 5th. My neuro didn't tell which type I have though. I know he said, "now we have to figure out her flares" but he never went on to make a determination. It was such a rushed and hectic day ... hopefully next time I see him, I will more information!

Hang in there!