*sigh* so my neuro appointment concluded with a final, medical-history-ensuing diagnoses of Remitting Relapsing Multiple Sclerosis. My initial diagnosis three weeks ago was "Multiple Sclerosis of Brain Stem" - which was basically the vague interpretation while my MS Specialist concluded her case study of me. I left feeling relieved yet with newfound fears...
A nurse will be coming by to show me how to give myself shots of Novatrone - I am on Trileptal for my "ms hug" and parasthesia for the next several months...and I'm working on an 18-day taper Prednisone pack. What a change of events in 2013!! lol
I don't see her again for three months - so I guess now it is just time to manage it, get this flare under control if possible, and get back to work!! I was told that it is entirely possible for several months to go by before my symptoms disappear - there is just no telling - so I am also mentally preparing myself to get on with things with half my body numb. It's cool - I can dig it!!
For those of you (us) that have been recently diagnosed or are in limbo land indefinitely, here is my suggestion:
Own it - do not let it own you...
A nurse will be coming by to show me how to give myself shots of Novatrone - I am on Trileptal for my "ms hug" and parasthesia for the next several months...and I'm working on an 18-day taper Prednisone pack. What a change of events in 2013!! lol
I don't see her again for three months - so I guess now it is just time to manage it, get this flare under control if possible, and get back to work!! I was told that it is entirely possible for several months to go by before my symptoms disappear - there is just no telling - so I am also mentally preparing myself to get on with things with half my body numb. It's cool - I can dig it!!
For those of you (us) that have been recently diagnosed or are in limbo land indefinitely, here is my suggestion:
Own it - do not let it own you...
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