Urinary frequency

[heretoday]

fibromyalgia

Does any one have this along with MS??

[heretoday]

need help with fibromyalgia

Can anyone help me with fibromyalgia or CIDP? Been down on legs. I have it from my neck to my toes.

[KoKo]

Hello heretoday

Welcome!

You might get more responses if you start your own thread and ask your question about fibro.

On the bottom (left side) of the forum page, click on New Thread.

Take care,
KoKo

[lsce2000]

Botox injections for Bladder issues

For those with Bladder issues, after my last bad relapse in July 2008 that is what the worst permanent issue that it appeared to leave. Went through months of pelvic floor treatment stimulation, acupuncture, you name it and seems just got worse. As some of you mentioned, I could go a lot every 10 minutes and hardly drink anything all day, it would be sudden and I would pray I would make it as where I work it is a long trip.

Working was difficult for fear of accident and felt unproductive as was rushing to the bathroom all the time - sometimes just sat down at desk to have to rush again - who knows what my coworkers thought I was doing all the time, going out anywhere became difficult and I limited myself, I knew where the bathroom was in every place possible as the minute I got out of the car I had to rush, I was miserable, at 36 with 2 young boys I was desperate. I had 2 accidents and was depressed. My urologist and neurologist mentioned they now do Botox injections in the bladder to help people with chronic issues and those w/MS, I had to go through some time to get insurance to approve, but they did, I had first one in Oct. 2009, then again in April 2010, then just in January 2011, it appears it lasts longer after each one.

It is a simple quick outpatient procedure and no pain, but you do have to be put under anesthesia. It has given me my life back. The downfall for me is I now do not empty my bladder completely, and when I just have had procedure it is hard to go on your own at all, so to empty and prevent infections I have to self catheter 4 - 6 times a day, which honestly is not a big deal and I will take it over the other any day. Definitely worth investigating if you have severe issues. Hope this helps someone.

**Post broken into paragraphs by Moderator for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print.**

[Coriander]

I have bladder urgency and frequency issues as well and though very close to the bathroom sometimes I do not make it. I use poise pads just in case for those special situations. My body just does not work as well as I would like.

I use oxybuynin when it is unbearable and I keep having to get up umpteen times during the night. I too am concerned about my difficulty voiding at times but I cannot live in the bathroom.

[Mamabug]

A related thread

http://www.msworld.org/forum/showthread.php?t=114498

[hope32]

Part of my recent relapse is I had about 5 days where I had to pee every 10-30 minutes! (And 4-6 times overnight.) It was nuts! They sent me to my local dr to rule out a UTI but that was negative. I am now on Vesicare and it actually seems to be working much better for me than Detrol did. In recent years I've usually had to use the loo on average of every 1-1.5 hrs and now on Vesicare it seems I'm only going 5-8 times a day so far, which for me is a major improvement. They said it would probably be good for me to see a neuro-urologist too. If you've been to one, can you tell me a little about it? What kind of testing do they do?

[maitrimama]

Another annoying Aha moment

Urgency, that't what it's called! I have always peed often. If I am drinking as much water as recommended I can every hour, but that has been my normal. Lately when I have to go, as soon as my brain sees we are in the bathroom I start to pee, hopping around (almost killing myself with my lack of balance) trying to get my jeans unzipped doing the potty dance. Good thing I am not working and have plenty of dry undies close by!

[laura g]

I went to see a urologist because I go at least every three hours and when the urge comes on , I sometimes can't get to the bathroom in time and was starting to have little accidents .
I was told to go with a full bladder and then empty it at the dr's office . She did a sonogram and I had completely emptied my bladder so retention is not a problem - I knew it wasn't - I just can't store urine for any length of time hence the going all the time . She suggested a drug - Vesicare- helps with frequency - so I am going to try it . I will let you know if it does help .