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    #16
    Thanks. Will try that.

    ~ Faith
    ~ Faith
    MSWorld Volunteer -- Moderator since JUN2012
    (now a Mimibug)

    Symptoms began in JAN02
    - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
    - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
    .

    - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
    - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

    Comment


      #17
      Saw my MS Specialist today. Her nurse did a test (a sonogram, maybe?) of my bladder, after I voided, to see if it was empty. And, it almost was. So, they didn't think retention is a problem.

      They also didn't think that the day time frequency I complain about is much different than what other women my age experience, although I'm not so sure about that. (Thought that, nighttime, I'm probably peeing more than the norm.)

      My doc did give me a rx for something that I plan to take when on a car trip, so we don't need to stop so often. Other than that, recommended that, if it continues to seem to be a problem, to ask my PCP for a referral to a urologist. But, didn't seem too concerned.

      Related to that, I did try the Magnesium. Last night, for the first time in probably a year, I only got up once! Today, during the day, it's success seemed to vary. Sometimes, I still had to go every 1.5 hours or so. Once, I waited 4 hours!

      So, I'll keep trying that, and, decide if I need to pursue anything else.

      Thanks, Toomny, for the magnesium tip!

      ~ Faith
      ~ Faith
      MSWorld Volunteer -- Moderator since JUN2012
      (now a Mimibug)

      Symptoms began in JAN02
      - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
      - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
      .

      - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
      - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

      Comment


        #18
        Originally posted by MamaBug View Post
        Related to that, I did try the Magnesium. Last night, for the first time in probably a year, I only got up once! Today, during the day, it's success seemed to vary. Sometimes, I still had to go every 1.5 hours or so. Once, I waited 4 hours!

        So, I'll keep trying that, and, decide if I need to pursue anything else.

        Thanks, Toomny, for the magnesium tip!

        ~ Faith
        Faith, I hope you notice ongoing improvement with magnesium.

        I have taken magnesium for a number of years. For me, magnesium has never made a difference with urinary issues.

        I use magnesium for bowel issues. Magnesium is known for helping with constipation. A side effect can be diarrhea.

        Faith, here is some information about magnesium, what it might help, side effects, and interactions:
        http://www.nlm.nih.gov/medlineplus/d...tural/998.html
        Diagnosed 1984
        “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

        Comment


          #19
          magnesium

          Unfortunately magnesium helps to sooth those muscles that would help you control your bowels. When I went to the pharmacy the other day, the pharmacist specifically told me not to take too much magnesium because it will have a laxative effect and that was to put it mildly. Imagine that on a road trip with the in-laws...
          RRMS Diagnosed December 2009,
          on Copaxone December 2009-October 2011 -
          Starting interferons hopefully soon.

          Comment


            #20
            Will keep trying the magnesium. Since yesterday's post, I've noticed mixed results. Could be, that I've gone 4 hours before, and not noticed. But, I am fairly sure that I haven't had an only-on-trip-to-the-bathroom-at-night time for a long time.

            Also, if the way magnesium works is relaxation, and my problem is not retention, then, maybe magnesium would not solve my problem.

            ~ Faith
            ~ Faith
            MSWorld Volunteer -- Moderator since JUN2012
            (now a Mimibug)

            Symptoms began in JAN02
            - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
            - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
            .

            - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
            - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

            Comment


              #21
              Originally posted by SNOOPY View Post
              ...
              Faith, here is some information about magnesium, what it might help, side effects, and interactions:
              http://www.nlm.nih.gov/medlineplus/d...tural/998.html
              Thanks, Snoopy, for the link. Just read it; they don't list urgency issues, that I could notice. Will keep experimenting, and, reconsider, after awhile.

              ~ Faith
              ~ Faith
              MSWorld Volunteer -- Moderator since JUN2012
              (now a Mimibug)

              Symptoms began in JAN02
              - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
              - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
              .

              - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
              - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

              Comment


                #22
                Originally posted by MamaBug View Post
                Thanks, Snoopy, for the link. Just read it; they don't list urgency issues, that I could notice. Will keep experimenting, and, reconsider, after awhile.

                ~ Faith
                Your welcome, faith
                Diagnosed 1984
                “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

                Comment


                  #23
                  Originally posted by MamaBug View Post
                  [B][SIZE=3][COLOR=purple]
                  Thanks, Toomny, for the magnesium tip!
                  You are welcome! I hope you have continued improvement.
                  DX 10/2008
                  Beta Babe 12/2008-07/2013
                  Tecfidera 07/2013-01/2018
                  Aubagio 01/18-09/20

                  Ocrevus 09/20-present

                  Comment


                    #24
                    Interstital Cystitis

                    Hi,

                    I just wanted to add that I have had problems with pee'ing since I was young.
                    Going alot, pressure, pelvic pain and urgency.
                    I have had this since I was 16 and had many tests to see what was going on. I had a Laparoscopy at 23 and still no results.
                    Fast forward to now, 2011 at 30 years old and I have been DX with Interstital Cystitis, Bladder Pain Syndrome or Irrital Bladder. Which ever you want to call it, its all the same.
                    You usually dont retain urine, its just your bladder is irritated by almost everything. Certain drinks, foods, stress.

                    I was dx within 10mins of seeing the Urologist, and was extremely surprised.
                    The last two days I have been keeping track of the times I go, and yest was 22 times with only small outputs.

                    Im not sure of the difference between that and a Neurogenic Bladder though it could be something to mention to your doctor.

                    xLx

                    Comment


                      #25
                      Tests for Urinary problems

                      Mamabug, was your test like an ultrasound? I was supposed to have a test where they put catheters in your ureter and anus then put water in and to see how much the bladder can hold.

                      The reason for the cath in the anal region is to test muscle. Ugh.

                      I wish my doc would do an ultrasound or something of that type first.

                      I missed my appt., sick with upper respiratory infection. Can't say I'm sorry.

                      I have had quite a few UTI's, don't have trouble going but do have trouble if I cough or sneeze. I was sicfor long time with a sinus problem and developed a horrible cough. I'm sure my bladder problem began with that. I am also 'older' and unfortunately bladder problems arise. However, I never had a problem until the coughing.

                      I'd cough so hard it would hurt. I'd empty my bladder and still be coughing so hard it would sting.

                      Also suspect I cracked a rib.

                      Not fun.

                      Diane
                      You cannot dream yourself into a character; you must hammer and forge yourself one.

                      Comment


                        #26
                        Yeah, Diane. That's sort of how I'd describe it. It wasn't anything invasive, like what you're talking about. They put some cold stuff on my belly and moved a gadget around it. Didn't have a screen to show results, like when I was pregnant, but, had results/picture printed out on computer.

                        They didn't tell me what it was called. Just called it a bladder test, or something kind of generic sounding.

                        ~ Faith
                        ~ Faith
                        MSWorld Volunteer -- Moderator since JUN2012
                        (now a Mimibug)

                        Symptoms began in JAN02
                        - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                        - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
                        .

                        - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                        - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                        Comment


                          #27
                          Yeah, I've had urinary frequency and urgency since college (though the urgency has gotten worse in the past few years). I tried Detrol LA but it caused such severe dry mouth that I was drinking all the time so it definitely didn't help my frequency.

                          The MS specialist I used to see (Randall Schapiro in MN) said that for some reason urinary issues were extremely common; he said just about all the patients at his MS center had urinary issues, even those with extremely mild cases.
                          2001: 1st 2 relapses, "probable MS." 2007: 3rd relapse. Dx of RRMS confirmed by MS specialist. Started Cpx. (Off Cpx Feb 08-Mar 09 to start a family; twins!) Dec '09: Started Beta. Oct '13: Started Tecfidera. May '15: Considering Gilenya.

                          Comment


                            #28
                            Oh, my current MS specialist also mentioned that an OTC antacid called Prelief can help with frequency issues. It does seem to help me a bit.
                            2001: 1st 2 relapses, "probable MS." 2007: 3rd relapse. Dx of RRMS confirmed by MS specialist. Started Cpx. (Off Cpx Feb 08-Mar 09 to start a family; twins!) Dec '09: Started Beta. Oct '13: Started Tecfidera. May '15: Considering Gilenya.

                            Comment


                              #29
                              TOO MANY TRIPS TO BATHROOM

                              I am having some bladder and kidney problems now and going through some really yucky tests at the Urologist. What has really helped so far is avoiding foods high in acid and potassium, no caffeine or alcohol. Its called an IC diet (Interstitial cysitis) This has helped during my testing process. Dont have a DX at this point.

                              Comment


                                #30
                                bladder

                                Originally posted by MBC3mom View Post
                                Yes, I have this problem. I also sometimes completely wet my britches without warning. It is one of the first sx I had (although all the docs had various other reasons for the problem). Anyway, noone has ever taken this seriously, so I just live with it.
                                Yes! me too. over the past few years i have learned to use poise pads and were elastic waist pants.lol when the moment stricks you have no time to waist. i also motorate when i drink depending on where and when iam going. good luck

                                Comment

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