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CHANGES AT MSWORLD - MSWORLD'S CLOSURE

We began with a mission and purpose to help others living with MS.

We were excited to get going!

And hit a few bumps along the way…

However, in all seriousness, we remain grateful for our amazing volunteers, members & all who have made MSWorld a valuable resource for all!

July 10, 2024, we celebrated the goodness of these past 28 years. With a heavy heart, we will be ending our services.

We need a financial miracle to keep going forward.

We thank all for your support.

MSWorld's website will close on October 16, 2024.

“I personally want to wish all of you the guidance to find this type of support, as so many do here. Also, my prayers and love extends beyond my understanding. It has been a pleasure to steward this journey.”

God Bless you, Kathleen

Kathleen Wilson
Founding President
❤️

we leave knowing that
we did our best and
stayed true to our mission and purpose.


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But you're looking so good! Member Topic of the Month 6/2019

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    But you're looking so good! Member Topic of the Month 6/2019

    Your Member Topic for the month of June is here!
    Thanks to all who participated in May's Member Topic of the Month!

    How do others cope with the comment "you're looking so good" when you're feeling like crud? Is it really even worth the effort to try and be 'normal' when it takes all that you have to pull it off?

    Have you heard this before? Share with others how you cope with these comments and share tips or words of wisdom that will be helpful to others.

    We appreciate all your participation and hope to hear more from you! You can add more suggestions here: https://www.msworld.org/forum/showth...TH-suggestions!
    1st sx '89 Dx '99 w/RRMS - SP since 2010
    Administrator Message Boards/Moderator

    #2
    Three ways that I deal with it: Thank them for the compliment and let it go, Thank them and then compliment them on how good they look, or use humor bordering on sarcasm by saying something like "Thanks. Now that I know I look good, I can stop wasting my money on doctors and drugs and stuff." Which approach I use depends on who I am dealing with. The third option is one I generally use on someone who knows me pretty well or another person who has MS.

    Comment


      #3
      Hello CheerDown

      Originally posted by CheerDown View Post
      Thank them for the compliment and let it go
      This response works the best for me.

      PPMS for 26 years (dx 1998)
      ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

      Comment


        #4
        I almost always say "I'm doing the best I can."

        At times I may add something like "just slower today," or "older than I am," or a simple "Thanks, you too!"

        People that say these things mean no harm, they might even believe it due to how poorly we looked when last they saw us.

        What surprises me is when I feel darn good and hear.... "You ok? You don't look too good"

        Ahhh MS. What can anyone say?

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          #5
          One of my family members says "so you're doing great?"

          People don't realize that implicit in that is "if you're not doing great I don't want to hear about it."

          Just don't ask.
          All the best, ~G

          Comment


            #6
            Originally posted by gargantua View Post
            One of my family members says "so you're doing great?"

            People don't realize that implicit in that is "if you're not doing great I don't want to hear about it."

            Just don't ask.
            On the flip side of this, I just saw an article on one of the MS sites suggesting things never to say to someone with MS. Among them were: “does it hurt?” “Can I pray for you?” and “nice wheelchair.” Honestly I don’t see how any of these are offensive. If someone wants to direct positive thoughts to me via whatever their belief system is, that is a lovely gesture. If someone is curious about symptoms, that is an opportunity to educate them about MS. If someone things my assistive device is nice, that is merely an inclusive comment in my opinion and possibly another opportunity to provide education. Stay positive and hang in there.
            All the best, ~G

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