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Thread: MEMBER TOPIC OF THE MONTH suggestions!

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  1. 03-10-2016, 03:11 AM #1
    Kimba22's Avatar
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    MEMBER TOPIC OF THE MONTH suggestions!

    Each month, we will feature a new topic that was suggested by YOU, our MSWorld members. MSWorld volunteers will review them, and select one for our "Member Topic of the Month."

    We welcome your suggestions! Please submit them here.

    Thanks, everyone, and watch for our "Member Topic of the Month," coming soon!
    Last edited by Seasha; 01-27-2017 at 06:08 AM. Reason: changed title
    Kimba
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  2. 03-15-2016, 05:08 AM #2
    timeuponaonce
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    A few suggestions fo Member Topic of the Month...


    What a Great idea...

    Here are a few suggestions:

    Discussion of Finding an MS Specialist.

    How to ask for a Second Opinion.

    Is there hope for treatments coming soon for SPMS and PPMS?

    Discussion of Funny Stories.


    I look forward to lots of suggestions from others... !

    Time

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  3. 03-15-2016, 07:44 PM #3
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    I'd like to see more specific differences between the MS types.

    Not officially diagnosed due to non-MS-specific spots on MRIs, but the neurologists all agree it's MS.
    Frustrated. January 2019: finally saw an MS specialist worth seeing. Maybe we'll get to the bottom of this.
    EDSS of 5.5, sometimes 6.0
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  4. 03-16-2016, 05:34 PM #4
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    fatigue, zzzzzz, fatigue, zzzzzzz, fatigue
    vertigo too
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    "ADAPT AND OVERCOME" - MY COUSIN
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  5. 03-19-2016, 03:02 AM #5
    myoest1
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    Topics of importance, generated by our members.

    locationScan the message boards to find common themes discussed, then list each topic in a general locatio that is easily accessable by all, address each topic as best possible wirh factual information pertaining to each topic. This will help clear misunderstandings.
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  6. 03-19-2016, 04:10 AM #6
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    mood swings
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    "ADAPT AND OVERCOME" - MY COUSIN
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  7. 03-23-2016, 11:52 PM #7
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    Depression and feeling alone in your diagnosis
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  8. 03-24-2016, 12:36 AM #8
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    The 5 stages of grief. Denial, anger, bargaining, depression and acceptance.
    1st sx '89 Dx '99 w/RRMS - now SP w/o flares
    Administrator Message Boards/Moderator
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  9. 03-24-2016, 03:24 AM #9
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    Quote Originally Posted by Seasha View Post
    The 5 stages of grief. Denial, anger, bargaining, depression and acceptance.
    And the fact that it isn't a 'one time thing' but something that is dealt with over and over .
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  10. 03-24-2016, 06:59 AM #10
    murphylives
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    Question ARE YOU AGING WITH MS?

    Quote Originally Posted by Kimba22 View Post
    Each month, we will feature a new topic that was suggested by YOU, our MSWorld members. MSWorld volunteers will review them, and select one for our "Member Topic of the Month."

    We welcome your suggestions! Please submit them here.

    Thanks, everyone, and watch for our "Member Topic of the Month," coming soon!
    REACHING 'OLD AGE' WITH MS CARRIES WITH IT A WHOLE NEW SET OF AGING WITHMS ISSUES!
    HOW DO OTHERS COPE WITHTHIS DOUBLE WHAMMY?
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  11. 03-24-2016, 03:50 PM #11
    Tia1
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    Unusual symptoms and other ailments connected to MS.

    How to get doctors to work together instead of blaming EVERYTHING on MS and expecting that we suffer in silence.
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  12. 03-28-2016, 12:43 PM #12
    Lilianap
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    Undiagnosed

    I know how you feel. Still undiagnosed although my neurologist believes it is MS but my lesions are not specific enough. Still see him every three months to see progress. Very frustrating.
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  13. 03-29-2016, 12:46 AM #13
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    Quote Originally Posted by Lilianap View Post
    I know how you feel. Still undiagnosed although my neurologist believes it is MS but my lesions are not specific enough. Still see him every three months to see progress. Very frustrating.
    Have you thought about getting a second opinion from another Neuro who is an MS Specialist?
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  14. 03-29-2016, 03:03 AM #14
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    Topic of the Month

    Topics of the Month Suggestions:

    1) How to figure out what symptoms are a medical, non-MS issue...is it a heart attack or just costochondritis again? Did I pull a muscle or is it a muscle spasm? Has my vision changed and I need new glasses or is it optic neuritis?

    2) How to control heat intolerance.

    3) Controlling the WHAT-IF demon. Today I feel good. I'm 40 now, what if I can't walk when I'm 50, what if I wake up tomorrow and can't see.... what if I have to have another steroid infusion....and the list goes on.

    4) How to help family members understand what we go through, what we need from them, and what they can and cannot expect from you.

    Thanks-
    AJ
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  15. 03-29-2016, 03:44 AM #15
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    this isvery similar to number four from above, how to ask others for help
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