Hello Everyone
It has been a bumpy ride. I have been in hospital at least 8 times this year because of Gastroparesis. BTW...August is Gastroparesis Awareness Month. I have met at least a dozen or so other MSers with Gastoparesis since my diagnosis last year. Green Ribbons are the color of the month. Please help me spread awareness of this, for it affects MSers as well.
My weight loss has been unbelievable. I have been approved for a gastric stimulator which is to be implanted this month. Its a rough surgery. I will be admitted, then go to rehab. I am having another procedure at the same time called a pylorplasty...will help the food leave the stomach.
I will remain on Tysabri, even though MRI capability will be nonexistant oncer the pacer is implanted.
This week two people died from my support group and two were admitted to hospice. Gastroparesis is brutal. I try to distance myself from the support group because it is so depressing...but it is hard not to get involved.
I am slowly accepting my fate in this whole mess. It is easier, just to accept it I think. There are feeding tubes if this does not work. I won't give up.
Try not to sweat the small stuff with MS. Leave your worry for when it gets really serious. And believe me, it can get really serious. Each day is a blessing. If you are able, enjoy the day...do something fun.
I really need prayers that this surgery works. 🌷💚🌷
It has been a bumpy ride. I have been in hospital at least 8 times this year because of Gastroparesis. BTW...August is Gastroparesis Awareness Month. I have met at least a dozen or so other MSers with Gastoparesis since my diagnosis last year. Green Ribbons are the color of the month. Please help me spread awareness of this, for it affects MSers as well.
My weight loss has been unbelievable. I have been approved for a gastric stimulator which is to be implanted this month. Its a rough surgery. I will be admitted, then go to rehab. I am having another procedure at the same time called a pylorplasty...will help the food leave the stomach.
I will remain on Tysabri, even though MRI capability will be nonexistant oncer the pacer is implanted.
This week two people died from my support group and two were admitted to hospice. Gastroparesis is brutal. I try to distance myself from the support group because it is so depressing...but it is hard not to get involved.
I am slowly accepting my fate in this whole mess. It is easier, just to accept it I think. There are feeding tubes if this does not work. I won't give up.
Try not to sweat the small stuff with MS. Leave your worry for when it gets really serious. And believe me, it can get really serious. Each day is a blessing. If you are able, enjoy the day...do something fun.
I really need prayers that this surgery works. 🌷💚🌷
Comment