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What are the odds?

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    #1

    What are the odds?

    I can't believe I am back on this board after saying goodbye six years ago! I never dreamt I would be back, but here I am again.

    I was diagnosed with MS seven years ago after I had an array of symptoms which included spasticity and weakness in left leg, balance problems, ataxia, tremors, bladder problems and severe fatigue. Diagnosis was made based on my history, neuro exam and 4/5 lesions on first MRI.

    The neuro followed me for a year and although I improved, I had some residual symptoms (left leg weakness and spasticity). Repeat MRI's showed the lesions had healed and no new ones appeared. At this point the doctor said she no longer thought it was MS.

    Other than the mild residual symptoms, I had pretty much forgotten I had anything wrong with me. Figured the doctors were right and put it out of my mind. I never had another flare and I fealt great.....until now!

    Two weeks ago horrible fatigue developed and slowly my left leg is getting worse. Spasticity is worse than ever, I am having painful spasms and a really hard time walking. Left hand/arm is also slightly weak.

    How could I be going through this again after six years? Is it possible they made a mistake and now all these years later it has come back? I do not want to go through this all over again, especially if the outcome is going to be the same. I had made peace with the unanswered questions and do not want to bring them back up.

    Is it possible this was always MS? Do you think I should pursue a diagnosis again or just wait and hope it resolves itself for another six years?

    Thanks
    Tags: None
    #2
    Hi Jennagain,
    Love your name.

    Without knowing all the particulars it sure sounds like how MS can present. In any event I'd get in touch with a MS specialist asap. Please keep us posted.
    He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
    Anonymous

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      #3
      Hi Jennagain and welcome back to MSWorld, although it sounds like you really don't want to be here again

      I am curious what you old username is

      Is it possible this was always MS?
      Yes, it possible

      Do you think I should pursue a diagnosis again or just wait and hope it resolves itself for another six years?
      If it was me, but it's not, I would once again pursue a diagnosis. It may very well be MS but it is always possible it's something else.

      In the case of MS, it is possible it could resolve it's self for a year or several but, would it not be better to know what you are dealing with than going through these same questions if this happens again?
      Diagnosed 1984
      “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

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        #4
        Isn't that the nature of ms? Relapse/remitting? At least at first. You could go many years without major symptoms.

        Something tells me you need to see a different neuro. One that knows something about ms. Like a specialist.

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          #5
          I Agree and Thank You

          Thank you all for your response. Part of me believes this is and always was MS, but having left that possibility behind, it's hard to accept once again this may be the case. I have lived such a full, active life the last seven years to the point even my doctor commented she never sees me.

          You are all right in saying this is the unpredictable nature of MS and also this may be something else. Once again my doctor is testing me for everything. I am seeing her tomorrow and going to insist on seeing a rheumatologist (never saw previously) and another neurologist.

          You are right that I do need answers. Just so hard to go down that road again, but whatever the outcome I definitely need some resolution. Any answer is better than none.

          Thanks for responding and I will keep you posted.

          P.s. to Snoopy. Sorry but I don't recall the name I used back then, but I am sure I used my name Jenn or Jennifer in it.

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