I'm just wondering how often everyone gets an MRI after they have been diagnosed. Minus flares.
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How often do you get an MRI?
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My first MRI was nine years ago, just before diagnosis. I've had four others since, all for monitoring, not because of relapses (although I had a pair) or anything specific. All were brain-only, with and without contrast, lasting about an hour. The first three on 1.5 Tesla machines, the last two on 3.0 Tesla machines.
My last MRI was a little more than two years ago. Because the course of my disease has been relatively benign, and because each MRI is spendy (the last one cost me $1,800) I'm hoping to not have one again for a while.
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I'm only a couple of years into this, but my neuro seems to be thinking annual brain scans. Since it's a university clinic I expect they just like to have lots of data...
At my Nov. appt. he decided to order another c-spine, but he hadn't planned to. I think it was something I said, but I can't remember what. Maybe he had forgotten about my (biggest) lesion at C2 and I reminded him?1st sx 11/26/09; Copaxone from 12/1/11 to 7/13/18
NOT ALL SX ARE MS!
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For my annual neuro appt last summer doc wanted the works b/c it had been 3+ yrs since the last one. I ended up getting brain only b/c we had not met insurance deductible & our budget couldn't handle the whole thing. My brain scan was free thanks the MS Society.
Barring anything bad happening, doc wants them every 3 yrs - that's often enough for me!DX 10/2008
Beta Babe 12/2008-07/2013
Tecfidera 07/2013-01/2018
Aubagio 01/18-09/20
Ocrevus 09/20-present
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Hmmm. Perhaps I will be asking for a break this year, barring anything new of course. And I guess if the GB12 is available by November I'll have to since that's what they want to switch me to as soon as it's out.
I was just curious really. I don't know another person near my age with MS so thanks everyone.
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