I met with my neuro Monday then had a subsequent MRI yesterday. I went back to Neuro today for results. As I expected my MRI of brain and C-spine were stable.
My neuro was honest and said he was truly at a loss. We talked about progression with a stable MRI which he agreed was possible.
He did offer a referral to a Neuro in Houston which I politely declined. I told him after all the tests I have had I refuse to see another doc. I reassured him I was comfortable with him and would much rather him tell me he was at a loss than throw meds at me. He said there is no doubt I have MS but he is concerned there may be something else going on along with it. Aren't I the lucky one!?
All that being said he ordered a CPK test and said he may do a muscle biopsy to rule out a muscular disease. The biopsy will depend on the CPK test.
So, needless to say I am now worried. I have been concerned about my MS from time to time but never worried. I think my MS is progressing. Does anyone have ANY other ideas? Any suggestion? I am totally at a loss.
My neuro was honest and said he was truly at a loss. We talked about progression with a stable MRI which he agreed was possible.
He did offer a referral to a Neuro in Houston which I politely declined. I told him after all the tests I have had I refuse to see another doc. I reassured him I was comfortable with him and would much rather him tell me he was at a loss than throw meds at me. He said there is no doubt I have MS but he is concerned there may be something else going on along with it. Aren't I the lucky one!?
All that being said he ordered a CPK test and said he may do a muscle biopsy to rule out a muscular disease. The biopsy will depend on the CPK test.
So, needless to say I am now worried. I have been concerned about my MS from time to time but never worried. I think my MS is progressing. Does anyone have ANY other ideas? Any suggestion? I am totally at a loss.
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