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LDN: who offered it to you.. how's it helping?

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    #16
    I've been taking it at the suggestion of my neuro for about 2 months now, and I do think it helps a little bit with my symptoms, which are foot drop and severe weakness on my right leg and hip (I have PPMS). I noticed a change shortly after I started taking the drug. Nothing monumental, but any improvement is a good thing.

    I dropped the copaxone injections and replaced it with the LDN (I also take 4-AP), and it definitely has done more for me than the injections ever did.
    Steve

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      #17
      Originally posted by Loved View Post
      Thanks, Sequoia. I did stay at 1.5 for I think 3 weeks but thought I needed to get up to 4.5 for effectiveness. So I'm glad to hear that for women perhaps the 1.5 dose will make a difference. I will begin again.
      I know several women who are on 1.5 mg and getting good results.

      For that matter, some men have to back down from the 4.5 mg dose because of persistent spasticity, and still get good results.

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        #18
        Following this, even though it's a very old thread. After a lengthy discussion with my MS specialist yesterday, and after she declined to rx it 5 years ago when I asked, she reluctantly agreed to rx it because ((sigh)) she believes it might have a helpful placebo effect for me. I hope to fill it soon. There is no compounding pharmacy in my community so we'll need to go out of town
        ~ Faith
        MSWorld Volunteer -- Moderator since JUN2012
        (now a Mimibug)

        Symptoms began in JAN02
        - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
        - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
        .

        - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
        - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

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          #19
          Following this thread, even though it's very old.. After a lengthy discussion with my MS specialist about LDN yesterday, she reluctantly agreed to rx it because ((sigh)) she believes it might have a helpful placebo effect for me. I haven't filled it yet because I don't have a compounding pharmacy in the community. We'll have to go out of town.
          ~ Faith
          MSWorld Volunteer -- Moderator since JUN2012
          (now a Mimibug)

          Symptoms began in JAN02
          - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
          - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
          .

          - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
          - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

          Comment


            #20
            Originally posted by Mamabug View Post
            Following this thread, even though it's very old.. After a lengthy discussion with my MS specialist about LDN yesterday, she reluctantly agreed to rx it because ((sigh)) she believes it might have a helpful placebo effect for me. I haven't filled it yet because I don't have a compounding pharmacy in the community. We'll have to go out of town.
            I wish you all the best on your new journey. Please keep us informed on how you feel once you start taking it.
            Kathy
            DX 01/06, currently on Tysabri

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