LDN: who offered it to you.. how's it helping?

[sich59]

I've been taking it at the suggestion of my neuro for about 2 months now, and I do think it helps a little bit with my symptoms, which are foot drop and severe weakness on my right leg and hip (I have PPMS). I noticed a change shortly after I started taking the drug. Nothing monumental, but any improvement is a good thing.

I dropped the copaxone injections and replaced it with the LDN (I also take 4-AP), and it definitely has done more for me than the injections ever did.

[Sequoia]

Thanks, Sequoia. I did stay at 1.5 for I think 3 weeks but thought I needed to get up to 4.5 for effectiveness. So I'm glad to hear that for women perhaps the 1.5 dose will make a difference. I will begin again.

I know several women who are on 1.5 mg and getting good results.

For that matter, some men have to back down from the 4.5 mg dose because of persistent spasticity, and still get good results.

[Mamabug]

Following this, even though it's a very old thread. After a lengthy discussion with my MS specialist yesterday, and after she declined to rx it 5 years ago when I asked, she reluctantly agreed to rx it because ((sigh)) she believes it might have a helpful placebo effect for me. I hope to fill it soon. There is no compounding pharmacy in my community so we'll need to go out of town

[Mamabug]

Following this thread, even though it's very old.. After a lengthy discussion with my MS specialist about LDN yesterday, she reluctantly agreed to rx it because ((sigh)) she believes it might have a helpful placebo effect for me. I haven't filled it yet because I don't have a compounding pharmacy in the community. We'll have to go out of town.

[pennstater]

Following this thread, even though it's very old.. After a lengthy discussion with my MS specialist about LDN yesterday, she reluctantly agreed to rx it because ((sigh)) she believes it might have a helpful placebo effect for me. I haven't filled it yet because I don't have a compounding pharmacy in the community. We'll have to go out of town.

I wish you all the best on your new journey. Please keep us informed on how you feel once you start taking it.

[Mamabug]

Update:
I think LDN might be helping a little bit with balance and stairs. i feel like I need a little less help from a combination of handrails on one side and cane on the other side.

I'd hoped to notice a bigger difference, but I do think it's something. I'm not sure if it's "worth" what the $ cost is. But, both my Heath Consultant and my Kinesiologist tell me it's good for me when they do muscle testing. So, I usually accept what they tell me and I've decided to continue with LDN for now.