I’m 24, male, diagnosed PPMS Feb 2020... I used to be a bodybuilder. 5’10 245 on heavy cycles, bodybuilder. Now I can barely stand on my own sometimes. I used to deadlift 500+ pounds and now I can barely hold a coffee cup or text, my hands are so messed up . My brain is slowly eroding, it’s taking longer and longer to form a coherent thought... If I’m 24, I’ll be in a nursing home if I’m lucky. I really do hope I get hit by a bus before this gets any worse.
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I really just can’t do this long term
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Originally posted by gotlesions View PostI’m 24, male, diagnosed PPMS Feb 2020... I used to be a bodybuilder. 5’10 245 on heavy cycles, bodybuilder. Now I can barely stand on my own sometimes. I used to deadlift 500+ pounds and now I can barely hold a coffee cup or text, my hands are so messed up . My brain is slowly eroding, it’s taking longer and longer to form a coherent thought... If I’m 24, I’ll be in a nursing home if I’m lucky. I really do hope I get hit by a bus before this gets any worse.
I'm wondering if your neuro has talked with you about the disease modifying drug called Ocrevus. It has been shown to be quite effective in younger persons with PPMS.
Are you getting any type of treatment? Thanks.
Looking forward to your continued sharing.PPMS for 26 years (dx 1998)
~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~
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Originally posted by gotlesions View PostI’m 24, male, diagnosed PPMS Feb 2020... I used to be a bodybuilder. 5’10 245 on heavy cycles, bodybuilder. Now I can barely stand on my own sometimes. I used to deadlift 500+ pounds and now I can barely hold a coffee cup or text, my hands are so messed up . My brain is slowly eroding, it’s taking longer and longer to form a coherent thought... If I’m 24, I’ll be in a nursing home if I’m lucky. I really do hope I get hit by a bus before this gets any worse.
gotlesions,
The first thing that comes to mind is the discipline, effort and dedication that goes into bodybuilding.
Hard to transfer these disciplines to deal with MS. But you have to! If MS does one thing it is this: It offers an opportunity to discover what we are made of.
The collective experiences of those who respond will be helpful to you. Remember you have youth and time. And KoKo pointed to disease modifying drugs also. There is always hope.
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Originally posted by 502E79 View Postgotlesions,
The first thing that comes to mind is the discipline, effort and dedication that goes into bodybuilding.
Hard to transfer these disciplines to deal with MS. But you have to! If MS does one thing it is this: It offers an opportunity to discover what we are made of.
The collective experiences of those who respond will be helpful to you. Remember you have youth and time. And KoKo pointed to disease modifying drugs also. There is always hope.RRMS 2005, Copaxone since 2007
"I hope to be the person my dog thinks I am."
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I was far from a bodybuilder, but I was a physically-active, strong-for-my-age farm girl. I could bench press far more than my body weight just from a lifetime of carrying feed sacks and hay bales. In my free time, I hiked for miles in the hills around my house. It's been nearly 40 years since I had to stop all that, and I still miss it, but I had to stop grieving for my own sake.
502E79 said it clearly. As hard as it seems right now, find some new interests and focus on what you CAN do. Don't see any of this as a lack in yourself. You didn't cause this. You can't cure this. What you can do is take that emotional strength and focus it on something different. It won't be easy, but becoming a bodybuilder wasn't easy, either.
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I'm sorry you're experiencing feelings of being overwhelmed. You may want to look up information on David Lyons for a kindred spirit.
https://multiplesclerosis.net/guest-...w-david-lyons/
I wish you well...
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Yeah no
I tried finding other hobbies. I can’t even fish. The knots are beyond my hands. I’m 24 years old and I can’t even pee standing up. I’d go jerk off or something but that doesn’t work either. I don’t really see any point in continuing if this disease will just make my life a living hell.
**Edited by moderator in compliance with Guideline #4
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