I've been posting and reading this site because I don't know any other place to go for primary progressive MS. Why is everything being moved from here to different sites and it doesn't even show where it was moved to. What's up?
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Sorry that you had trouble finding it after it was moved. We tried to tell people where it was. You'll find it here:
Originally posted by SeashaOur old "Limbo Landers and Newly Diagnosed" forum has been changed to include RRMS, SPMS, PRMS and PPMS into separate sub-forums for your convenience! Please refer to these sub-forums if you have specific questions and experiences regarding these.
You can find this forum here - http://www.msworld.org/forum/forumdi...SP-PR-and-PPMS~ Faith
MSWorld Volunteer -- Moderator since JUN2012
(now a Mimibug)
Symptoms began in JAN02
- Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
- In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08.
- Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
- Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.
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by putting " RR-SP-PR-PP forum" T you mean:
Limbo Landers, Newly Diagnosed, RR, SP, PR and PPMS
Ignore the word: NEW "that came when I used copy and paste."
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Originally posted by fourtimer View Postby putting " RR-SP-PR-PP forum" T you mean:
Limbo Landers, Newly Diagnosed, RR, SP, PR and PPMS1st sx '89 Dx '99 w/RRMS - SP since 2010
Administrator Message Boards/Moderator
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Fourtimer --
Please let us know if you're still have trouble or finding some things confusing.
You can post about Primary Progressive MS here:
http://www.msworld.org/forum/forumdi...Progressive-MS~ Faith
MSWorld Volunteer -- Moderator since JUN2012
(now a Mimibug)
Symptoms began in JAN02
- Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
- In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08.
- Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
- Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.
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