Can I have an experienced opinion?

[SunshineDaydreams]

I've been disabled, sick, fatigued, tremors, pain, balance problems, speech problems, weakness, limp since April. My mobility went from limp, to needing cain by August, to needing wheelchair now. My speech from slurs and slows to nonsense in October. My fatigue from 2-3:00 afternoon crash to two needed naps per day. My MRIs from no lesions, dx on LP and history in June to lesions and positive evidence of active MS in October.

Is this PPMS ? I have not had a remission. I am on my first steroid therapy dose to see if we can get there - but I'm really curious if this is PPMS. No doctor has told me yet if is RRMS or PPMS - one did say they thought possibly SPMS because of history, but that makes no sense either since I am only now showing visible lesions.

[Thinkimjob]

I don't have PPMS, and I am not a doctor, so you know the drill, but I have had RRMS for 14 years. What you describe is exactly how I feel all of the time, after all these years.
My neurologist will not say I've got SP now, possibly because of the whole dmd prescription protocol.
I don't know whether your MS is PP, but whatever sort it is, it sounds very aggressive.
Maybe it's just a really bad flare, here's hoping. They can last for a long time.
Have the steroids helped yet?

[penkalet]

Hello,
I read few day ago that to be DX SP you need to have a steady decline for 1 year so I guess you may still have a long, long flair.
When I was DX my flair lasted 5 months before I started to improve.
We are all different so who knows!
Hope the best for you.
Alain

[SunshineDaydreams]

Thank you both. The steriods seem to have helped with the speech - but I have new tremors since finishing the course. I'm hoping they are related to the steroids and will go away. I believe I need to wait a few weeks to see if they've helped me at all any other way.

The 1 year explains why noone has told me yet if this is RRMS.

Thank you again!

[SmartyPants196]

Keep on learning

Every person with MS is different, so you need to talk more to your neurologist, if your MS is gradual then its more likely PP but if it gets better then worse then better its more remitting kind. My MS was gradual, foot drop, heat sensitive, pain in back and fatigue, I have to take a nap every day from 4-6 without it i am hard to live with and i get nothing done, if i want the strength to make dinner and clean up afterwards the nap is what you need.

if you need two naps so be it, movement is important, exercise even if you hurt, and keeping the mind distracted helps. Also if you are in pain, see a pain specialist and get on a med so you get your life back. Keep active, and keep learning and asking questions. Finding a good neurologist is a must, they know the answers and can better find out which kind of ms you have. Good luck

** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **


QUOTE=SunshineDaydreams;1390129]I've been disabled, sick, fatigued, tremors, pain, balance problems, speech problems, weakness, limp since April. My mobility went from limp, to needing cain by August, to needing wheelchair now. My speech from slurs and slows to nonsense in October. My fatigue from 2-3:00 afternoon crash to two needed naps per day. My MRIs from no lesions, dx on LP and history in June to lesions and positive evidence of active MS in October.

Is this PPMS ? I have not had a remission. I am on my first steroid therapy dose to see if we can get there - but I'm really curious if this is PPMS. No doctor has told me yet if is RRMS or PPMS - one did say they thought possibly SPMS because of history, but that makes no sense either since I am only now showing visible lesions.[/QUOTE]