Hi - I've just found this website today, thank you. I was diagnosed with PPMS 4 weeks ago from the Mayo Clinic in Scottsdale, AZ. After the initial shock, sadness, anger, etc. and reading up I realized I've had symptoms for at least 2 yrs. Met with the MS team 1 wk ago and he said maybe it was RRMS or a little of both? I that unusual? I have so many questions...
2004 had bouts of vertigo for about 1 1/2 yrs, ENT dr sent me to neuro doc and ordered brain MRI which showed lesions and "possible" ms dx. ENT dr said I didn't have MS. Vertigo went away but feeling of imbalance never did.
2008/2009 had lost 45 lbs (on purpose) to look and feel my best turning 50 yrs old...starting limping and hip pain. Ortho doc said I probably over exercised and sent me to PT.
2010 weakness in R leg continued and got worse, having bad cramps in R calf, then developed foot drop. MRI of lumbar showed minor bulge in L4 but not explaining the sysmtoms.
2011 - Continued weakness in leg and unable to lift leg more than about 5 inches off ground, fatigue, unable to stand/walk more than about 5 min now. Sent to neuro in January to rule out anything but the disc, no tests done just minor coordination stuff, and no dx.
Last week MS team dr said maybe I might have RRMS and not PPMS??
I thought that RRMS started in 20-30's, with an acute attack, loss of vision or unable to walk?
I'm very confused....
2004 had bouts of vertigo for about 1 1/2 yrs, ENT dr sent me to neuro doc and ordered brain MRI which showed lesions and "possible" ms dx. ENT dr said I didn't have MS. Vertigo went away but feeling of imbalance never did.
2008/2009 had lost 45 lbs (on purpose) to look and feel my best turning 50 yrs old...starting limping and hip pain. Ortho doc said I probably over exercised and sent me to PT.
2010 weakness in R leg continued and got worse, having bad cramps in R calf, then developed foot drop. MRI of lumbar showed minor bulge in L4 but not explaining the sysmtoms.
2011 - Continued weakness in leg and unable to lift leg more than about 5 inches off ground, fatigue, unable to stand/walk more than about 5 min now. Sent to neuro in January to rule out anything but the disc, no tests done just minor coordination stuff, and no dx.
Last week MS team dr said maybe I might have RRMS and not PPMS??
I thought that RRMS started in 20-30's, with an acute attack, loss of vision or unable to walk?
I'm very confused....
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