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I just tuned 38 on Sunday (22nd). Yeah what to do next is the big question. I just stepped back from working outside my house (self employed) but want to keep my hand in, which I can do my computer. I had to do this because my pain specialist said I needed to lower my stress level. I am still adjusting to not being as busy as I was. I am also getting ready to start chemo, so it's probably a good thing that I am not working like I was. I need to look after myself if I am going to have any chance of this treatment benefitting me.
What's it been like for you?
OMG where to start I am not working anymore and thats so weird. I am still learning what is too much and when to stop. I have days that I feel so good I wont to do everything but if I do I better not have anything the next fews days that has to be done. Every day in a new day with new surprises. Just breathe I tell myself.......I am looking at moving before this coming wither into Halifax closer to my docs and treatment and closer to the MS clinics so I can help out some because my docs dont think I will work full time again too much stress.
OMG where to start I am not working anymore and thats so weird. I am still learning what is too much and when to stop. I have days that I feel so good I wont to do everything but if I do I better not have anything the next fews days that has to be done. Every day in a new day with new surprises. Just breathe I tell myself.......I am looking at moving before this coming wither into Halifax closer to my docs and treatment and closer to the MS clinics so I can help out some because my docs dont think I will work full time again too much stress.
I hear ya-I am the same way-on the good days, I go full tilt, so I don't feel like I am wasting the good ones. It's hard trying to figure out what to do. No self-help book can tell you-youhave to figure it out for yourself. It's hard not being able to trust that if you make plans in advance you will be able to follow through. It's a big adjustment.
DX w/NMO Nov. 2012
(Mistakenly DX w/MS March 2008)
Hello All
It is 2 am in the morning and i can't sleep.To put it polietly, i am so angry.I only get about 2 to 3 hours sleep a night.What woke me up tonight is the left hand side of my face is numb,never has happened before.I am just wondering if others have had this before.Or should i go get it checked out.
Hi there all! Been a reader for about 2yrs now, and live outside a farming town called Crysler,On.
Deborah, it's always a good idea to check in with the Doc when you fell you have a new symptom!
My wife had to tell me before being dx on Sept '07 that I was stiffen up, stopped breathing for 45seconds, then repeat the whole thing for about 5min at a time (Didn't even know I was doing it)
Now when I wake up, by myself (Wifey couldn't sleep anymore) I know i've had a bad night from the sheets being on the floor LOL and feel as tired as I do when going to bed! Point is Deb, your Doc is your best friend, he/she needs to know, they may find out it isn't the MS! Are you involved with an MS Clinic?
Just learning the ins and outs of this site - I've been on "Patients Like Me" for quite awhile. Found a link from there to "MS Sucks" and from there to here. Happy to see a Canadian group, as on many topics I have had little in common with the Americans. I also tried MS Watch (I'm new on Copaxone) but there wasn't much activity there.
Hope I get this one figured out - thanks!
Grew up in Alberta, but now live in Vancouver, BC.
According to what I've read, people from the prairie provinces are among those in the world with the highest risks of getting MS. I'm curious if a quick survey could be done on this message board to see where we all grew up?
There used to be a poll feature, that would've been a great way to survey answers from MSWorld members, but it has been disabled.
I suspect that any other way of collecting information might be more tedious and less useful.
~ Faith
~ Faith MSWorld Volunteer -- Moderator since JUN2012 (now a Mimibug)
Symptoms began in JAN02
- Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
- In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08. - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.
~ Faith MSWorld Volunteer -- Moderator since JUN2012 (now a Mimibug)
Symptoms began in JAN02
- Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
- In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08. - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.
Welcome Dennd and everyone! Den, MBP8298 (Dirucotide/?) should be avail soon. The downside is it only works if you have the HLADR2/4 gene. The upside is 75% of MS patients have that (sadly, not me )
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