"Those comments"
Hi guys, I have really enjoyed reading your posts (some with despair). Yes, I have had many of those comments too. The most hurtful one from my mother when first dx'd in 1987, I was married at the time (have now divorced him after 20+ years) - when I told her what the dx was after lots of tests etc. the first words out of her mouth were "Oh, poor J......(his name)"
Needless to say to my parents the sun shone out of this guy - Mum denies she said this when I have brought it up, but really! I didn't want sympathy, just a little support would have been good. The only thing "poor J..." was worried about was how it would adversely affect his life. No concern for me or how I may feel.
In conculsion, I have found that the majority of people, even those well-meaning and genuinely caring or concerned, just don't get it - particularly if there are no visible signs we have some kind of problem. You look ok. so you must be ok.
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
Hi guys, I have really enjoyed reading your posts (some with despair). Yes, I have had many of those comments too. The most hurtful one from my mother when first dx'd in 1987, I was married at the time (have now divorced him after 20+ years) - when I told her what the dx was after lots of tests etc. the first words out of her mouth were "Oh, poor J......(his name)"
Needless to say to my parents the sun shone out of this guy - Mum denies she said this when I have brought it up, but really! I didn't want sympathy, just a little support would have been good. The only thing "poor J..." was worried about was how it would adversely affect his life. No concern for me or how I may feel.
In conculsion, I have found that the majority of people, even those well-meaning and genuinely caring or concerned, just don't get it - particularly if there are no visible signs we have some kind of problem. You look ok. so you must be ok.
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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