I don't know if I am in the right spot... My mother had MS, it was horrible to watch... so very hard, she passed away about 6 years ago after a very long hard battle. (I am sorry I know that most of you don't want to hear this, and there have been many advancements in the last few years)
My son is 3 years old, he has had a lot of oddities in the last two years, when I type in his symptoms MS is one of the things that come up, but he is really too young from what I have read to have MS onset. Today we went to our second neurologist (one that only take very special cases) and I finally got up the courage to ask about MS. I was sure he was going to tell me I was silly because my son is so young. Instead I got a different response, he told me it was very interesting that I brought it up and that my mom had it. He said that last time we met he told me about a little boy who had one regression and they determined he had an auto-immune disease with a really long name, but it was a from of MS that only has one regression. He also told me it was a possibility and something to keep in mind for the future. He looked at Matt's MR and didn't see MS and said that it is better to do a spinal tap during a regression.
I was really hoping for reassurance that it wasn't a possibility. I know that we don't know anything yet and shouldn't worry until I know more, but after what I went through with my mom... it is so hard not to worry. Even calling my family and telling them it was a possibility was so hard.
My mom had her first documented symptoms very young, she was 11. They knew she had it before she got out of high school. It was a very different time them so she could have had other symptoms they just ignored. She is no longer living, my grandma doesn't have the best memory and blew her off for years thinking she was making things up. My aunt is 6 years younger than her and doesn't remember anything either.
Has anyone else gone through this? Anyone here who had early onset? I am sorry this is so long.
My son is 3 years old, he has had a lot of oddities in the last two years, when I type in his symptoms MS is one of the things that come up, but he is really too young from what I have read to have MS onset. Today we went to our second neurologist (one that only take very special cases) and I finally got up the courage to ask about MS. I was sure he was going to tell me I was silly because my son is so young. Instead I got a different response, he told me it was very interesting that I brought it up and that my mom had it. He said that last time we met he told me about a little boy who had one regression and they determined he had an auto-immune disease with a really long name, but it was a from of MS that only has one regression. He also told me it was a possibility and something to keep in mind for the future. He looked at Matt's MR and didn't see MS and said that it is better to do a spinal tap during a regression.
I was really hoping for reassurance that it wasn't a possibility. I know that we don't know anything yet and shouldn't worry until I know more, but after what I went through with my mom... it is so hard not to worry. Even calling my family and telling them it was a possibility was so hard.
My mom had her first documented symptoms very young, she was 11. They knew she had it before she got out of high school. It was a very different time them so she could have had other symptoms they just ignored. She is no longer living, my grandma doesn't have the best memory and blew her off for years thinking she was making things up. My aunt is 6 years younger than her and doesn't remember anything either.
Has anyone else gone through this? Anyone here who had early onset? I am sorry this is so long.
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