I have RRMS and my husband has SPMS. I have always been the type to never give up and press on, knowing that is the only reason that after 27 years I am still RR. My husband on the other hand is the opposite. When we married he was walking w/ a cane but is now in a wheelchair. For the past year he has been falling way too much and always thinks that I can help him. He is much bigger than me and we have some patient lifts but out of frustration when talking to me he raises his voice and says things that I do not need to hear which in turn just tears me up emotionally and makes me feel so small.
Needless to say I have had to call 911 many times for help. I can not convince him that he needs physical therapy. For that matter nobody can. I have even had to tell him that though I do not want to do this but he may have to go in the nursing home for a few weeks for rehab and he said if you put me in a nursing home you better just leave me there. I told him that you will be the most miserable man too. We have been married for 16 years and this has been the hardest thing to go through. I love him but then at other times, I feel like he is not the man that I married. Thank you for letting me get this off of my chest. I just wish there was an easy fix but I don't see it at all.
Needless to say I have had to call 911 many times for help. I can not convince him that he needs physical therapy. For that matter nobody can. I have even had to tell him that though I do not want to do this but he may have to go in the nursing home for a few weeks for rehab and he said if you put me in a nursing home you better just leave me there. I told him that you will be the most miserable man too. We have been married for 16 years and this has been the hardest thing to go through. I love him but then at other times, I feel like he is not the man that I married. Thank you for letting me get this off of my chest. I just wish there was an easy fix but I don't see it at all.
Comment