Allow Me to Introduce Myself

[Sooner_Gal]

I am a born and raised TX gal (DFW), however over my college years was converted into an OKIE!! In 2009, my husband and I moved to Louisville, KY. He is a seminary student getting his masters in pastoral ministries. Here is where I was diagnosed. Symptoms began in 2010 with tingling in my right arm. MS was my first thought as my sister was diagnosed 7 yrs ago. Doctors tested me for carple tunnel and 3 docs later finally began treatment for a pinched nerve. I was on board with that conclusion until the muscle spasms started.

After my first MRI, my chiro made the initial diagnosis. I have been to two different neurologists. My most recent seemed to be a keeper. She really knew what she was talking about and was very concerned with the size of my lesions. Apparently, I have had this for quite a while. She immediately started me on steroid infusions and suggested I start on Betaceron. Infusions were ok, had some strange side effects, but spasms have ceased. Tingling is still lingering around.

Coming up on 2 months later I have yet to begin on my Beta treatment. Thank God I'm not experiencing any major symtoms, but now it's time to move back home to OKC, so treatments will be prolonged a bit longer I'm sure. I really want to find a good neurologist and figured my current neuro would do all the hard work for me. She seems to be ignoring me, so I guess I have to find one on my own. If anyone has any suggestions please do share.Thus far living with MS hasn't been so bad, but this transition/waiting period is for the birds.

**Post broken into paragraphs by Moderator for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print.**

[kbloom2]

Welcome to MsWorld sorry to hear of your dx's. My suggeston would be go on NMSS.COM on there you can put in the zipcode you will be living in and they will list chapters for you from there you can research neurologist in the area they do not recommend but they can give you a list and you decide from there.
That would be my best bet... Again welcome, you came to the best place ever for support and info.
Kari

[KoKo]

Hi Sooner Gal

Welcome!

Glad to learn that so far you're not experiencing any major symptoms from the MS.

Coming up on 2 months later I have yet to begin on my Beta treatment.

I'm wondering why you've had to wait?

In any case, good luck with finding a neuro when you move to OKC - hope you find a good one! You can obtain some names of reputable neurologists from your local chapter of the National MS Society, as Kari suggested.

If you have any questions, just ask and we'll be glad to help if we can. Also, feel free to share your experiences, if you want to.

How is your sister doing? Hopefully she is doing OK.

Looking forward to seeing you around!

Take care,
KoKo

[RoyaleMSer]

Sooner Gal,

I'm born and raised in the Tulsa area but have since moved to Stillwater to attend OSU. There is The MS Center of Excellence in OKC that I have heard good things about. My old neurologist recently moved there. (She wasn't the best hence "old" but there are other neuros that have much better bedside manners.)

I too, am starting Beta soon. I guess we'll see how it goes!

Good luck!

[cocogirl]

Sooner Gal,

I am sooner born and raised and transplanted to Houston area.

I was diagnosed in OK back in the early 80's. I had a general neuro that my dh and I felt surely had a diploma from a paper mill.

He repeatedly told me that MS patients don't have pain from the disease.

He practiced in Norman back at that time but maybe he has retired by now or moved. I won't give his name for fear of being sued. Sorry I can't help more but an MS center with an MS specialist is the way to go if you can do it.

[Mdawnjohn]

I too have had difficulty with my neurologist listening to me. I have changed 4 times. I am finally in good hands at least with the neuro opthamologist. She is aggressive and listens. She knows my history and I do not have to spendv90% of my appointment going over my history. She sent me to a ms specialist at Louisiana state university ms clinic. I recommened you check medical school programs in your area and teaching hospitals. It is not convenient for me to drive the distance or invest the time but if i receive answers it will be so worth it. Good luck.