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It's Been a While!

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    It's Been a While!

    I hung out on limbo island a few years ago around here. I took a break, but now I am back.

    I am on neuro #4... going on 6 years of limboland. Not something I recommend, but there is apparently no escaping.

    All the experts say "sure sounds like MS", but my MRI's are clear. Other tests back up my symptoms, but of course don't prove it is MS. Pretty much everything else has been ruled out. So I am hanging on my hammock.

    Just got done doing an LP this week. Fun stuff! Anyways...

    Just thought I would re-introduce myself!
    Erin

    doing the Limbo since 2005

    #2
    Hi Erin

    Welcome back!

    Sorry to learn that you still don't have a diagnosis.

    Sometimes lesions can be so tiny, and they don't show up on MRI. (My neuro told me that after my first MRI)

    Some MRI's are very high powered now, and pick up more abnormalities than they used to.

    In any case, did you receive your LP results yet?

    Let us know what you find out, ok?

    Take care,
    KoKo
    PPMS for 26 years (dx 1998)
    ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

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      #3
      Hi Erin!

      Welcome back! I'll be anxious to hear your LP results. In my case it clinched an unsure diagnosis. Let us know what happens!

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        #4
        Thanks you guys! Just one more week of waiting.
        Erin

        doing the Limbo since 2005

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