Hi ....
This is all new to me and a bit scared of this MS thing ..Im 50 yrs old and I have a 12 yr old son and a 22 yr old son (he lives with his girlfriend) ... husband works away ... so pretty much facing this alone ...
All started about 3 yrs ago with odd sensations here and there ...burning pains , tinglings , electric zapping sensations, crawling bug and itching sensations around body ... overwhelming fatigue ... i would have these symptoms for days or wks then suddenly they would dissapear ...
My doc referred me to the Neurology dept and after a couple of appointments they decided to do an MRI scan on my brain (dec 2009) .... as they were not sure what it could be ...
Jan 2010 i had a very severe attack of Bells Palsy .... my doc said it was the worst he had seen .... the whole side of my face dropped and i couldn't close my eye ... my face was numb so my speech was affected etc etc .... after high dosage steriod treatment it seemed to get better.... only to return aug 2010 and a further 4 times .... ( BP ...6 times in 12 months).... also i had a hysterectomy in between all this..
Jan 2011 i realised i had not been back for results for MRI so arranged to see my Neurologist who told me they had found 1 lesion and i was SUPPOSED to have a follow up 3 months later ...
A few wks later i had the follow up MRI that NOW showed widespread Demelyination and multiple lesions .... which my Neurologist says is classic pattern of MS ...
She mentioned sending me for a lumbar pucture but after speaking to the head of Neurology has refered me straight to MS clinic ....
My appoint is next wk and feeling scared ...
I think i have had what is called a Relapse ?? As the past 10days i have had all my previous symptoms return with lots more new symptoms .... memory bad and foggy.. face tinglings,
Heavy legs feels like i have weights on them ... they went all rubbery the other day and my knee buckles slightly every now an then.... and a strange sensation around my ribs that felt like i was being squeezed by a python (it took my breath away) .. it came back and forth in waves and lasted on and off for 24 hrs .... my rt hand and arm feels weaker ... vertigo ...
Fatigue terrible also my feet hurt like walking on marbles...tingling sensations etc etc etc ....my legs feel strange if i cross them as they feel heavy (not attatched to me )??
My calves keep cramping and have burnings pains .... Also my head started shaking the other day ( no eye probs though).... is this normal or am i going mad ??
My doc has seen the reports from Neurology and is sure i have MS ... Will the MS clinic start me on meds ??
Very scared of the whole thing and thought of the meds scare me too as i hate needles ( the thought of me having to inject myself freaks me out) ... side effects of the meds also ....
Keep hoping they have got the wrong diagnosis ....??
Lelley
This is all new to me and a bit scared of this MS thing ..Im 50 yrs old and I have a 12 yr old son and a 22 yr old son (he lives with his girlfriend) ... husband works away ... so pretty much facing this alone ...
All started about 3 yrs ago with odd sensations here and there ...burning pains , tinglings , electric zapping sensations, crawling bug and itching sensations around body ... overwhelming fatigue ... i would have these symptoms for days or wks then suddenly they would dissapear ...
My doc referred me to the Neurology dept and after a couple of appointments they decided to do an MRI scan on my brain (dec 2009) .... as they were not sure what it could be ...
Jan 2010 i had a very severe attack of Bells Palsy .... my doc said it was the worst he had seen .... the whole side of my face dropped and i couldn't close my eye ... my face was numb so my speech was affected etc etc .... after high dosage steriod treatment it seemed to get better.... only to return aug 2010 and a further 4 times .... ( BP ...6 times in 12 months).... also i had a hysterectomy in between all this..
Jan 2011 i realised i had not been back for results for MRI so arranged to see my Neurologist who told me they had found 1 lesion and i was SUPPOSED to have a follow up 3 months later ...
A few wks later i had the follow up MRI that NOW showed widespread Demelyination and multiple lesions .... which my Neurologist says is classic pattern of MS ...
She mentioned sending me for a lumbar pucture but after speaking to the head of Neurology has refered me straight to MS clinic ....
My appoint is next wk and feeling scared ...
I think i have had what is called a Relapse ?? As the past 10days i have had all my previous symptoms return with lots more new symptoms .... memory bad and foggy.. face tinglings,
Heavy legs feels like i have weights on them ... they went all rubbery the other day and my knee buckles slightly every now an then.... and a strange sensation around my ribs that felt like i was being squeezed by a python (it took my breath away) .. it came back and forth in waves and lasted on and off for 24 hrs .... my rt hand and arm feels weaker ... vertigo ...
Fatigue terrible also my feet hurt like walking on marbles...tingling sensations etc etc etc ....my legs feel strange if i cross them as they feel heavy (not attatched to me )??
My calves keep cramping and have burnings pains .... Also my head started shaking the other day ( no eye probs though).... is this normal or am i going mad ??
My doc has seen the reports from Neurology and is sure i have MS ... Will the MS clinic start me on meds ??
Very scared of the whole thing and thought of the meds scare me too as i hate needles ( the thought of me having to inject myself freaks me out) ... side effects of the meds also ....
Keep hoping they have got the wrong diagnosis ....??
Lelley
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