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    Newly Diagnosed

    Hi. I'm Kim; thought I would introduce myself since I am new here.

    Yesterday it was confirmed that MS is responsible for all my symptoms I've been having.

    In December I was taken to the ER because they thought I was having a stroke. I had passed out twice and had a severe headache. They did MRI's, CT Scans, and heart tests. They found lesions on my MRI but were reluctant to diagnose MS. So reluctant in fact that the Neurologist at that time told me it couldn't be. They tried to do a Spinal tap by bending me over a table in the ER and holding me down without any anestetic. Two attempts and I screamed at the doctor...he left frustrated and angry. HE was angry can you beat that?

    After leaving the hospital I began having symptoms. Pain, extreme fatigue, speech issues, cognitive issues, etc. The Neurologist refused to consider any of the symptoms and wrote it off as migraines. I fired her and found another doctor who happens to be head of Neurology at a University and he has been great! He ordered another MRI which showed more lesions (3 months later) and the radiologist found additional lesions from the first MRI they missed.

    Yesterday, my Neurologist said he believes it is MS and is sending me to an MS specialist next week. I am still in a bit of shock I think but I am a very positive person and intend to fight hard to stay as healthy as possible.

    I think the hardest part was not knowing what it was, and feeling rather alone and though probably imagined thinking people thought I went from a strong person to someone who is kind of lazy. This really isn't me, i've always been a tough girl but the fatigue has been really hard and the pain equally so.

    It was good to stumble upon this site and see the stories of others....I don't feel quite as scared and alone now. Thank you.
    Hope for the best, prepare for the worst and that way you have all your bases covered.

    #2
    Hi Kim

    Welcome to MS World - nice to meet you!

    After leaving the hospital I began having symptoms. Pain, extreme fatigue, speech issues, cognitive issues, etc. The Neurologist refused to consider any of the symptoms and wrote it off as migraines. I fired her and found another doctor who happens to be head of Neurology at a University and he has been great! He ordered another MRI which showed more lesions (3 months later) and the radiologist found additional lesions from the first MRI they missed.
    Good move to fire your first neuro! Sounds like you found one who takes you and your symptoms seriously.

    Yesterday, my Neurologist said he believes it is MS and is sending me to an MS specialist next week.
    Good luck at your appointment with the MS Specialist. It's a good idea to write down all your symptoms, past and present, and how they have been affecting you. Take that with you to your appointment. My neuro really appreciated my documentation, and it helped him to get a better picture of what was going on with me.

    If you have any questions, please feel free to ask and we'll be glad to help if we can.

    Let us know what the specialist says, and how you are doing.

    Take care,
    KoKo
    PPMS for 26 years (dx 1998)
    ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

    Comment


      #3
      welcome

      Hi Kim

      It sounds like you had quite the horrific experience. Dr got mad at you? He had no bedside manner. I would have been screaming too. My dr and I play 'let's make a deal' whenever he mentions tapping anything on me. When the dr tried to put a shot in my neck after I got 3 herniated discs, he learned that my screaming was not worth the agitation in his waiting room. I say no. It's no.

      Best thing you ever did was find a dr who works with you. It can make dealing with this dx so much better. I wish you well.

      Comment


        #4
        Thanks

        Its nice to meet you all. Changing Dr's made all the difference for sure! Thanks for the advice, I've been keeping a medical journal with dr's appointments and medicines and procedures so that nothing gets crossed. Your right, I will add symptoms to it, it will help at the appointment i am sure.
        Hope for the best, prepare for the worst and that way you have all your bases covered.

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