AFTER MY SYMPTOMS OF MS STARTED ACTING UP MY INTERNEST SENT ME IN FOR A MRI. I ONLY HAD ONE LEISON, THE REPORT CAME BACK NOT ENOUGH TO DX AS MS BUT COULD NOT RULE OUT MS. I WAS SENT TO A NEUROLOGIST. HE DX ME WITH MS FROM THE MRI AND MY SYMPTOMS AND STARTED ME ON BETASRON SHOTS. AFTER THREE YEARS LOST HIM AS A DOCTOR, HE LEFT TO BE THE HEAD OF REHAB FACILITY. I STOPPED THE SHOTS, THE MS WAS TOLERABLE.
THEN A NEW SYMTOM STARTED, COULD BREATH IN BUT HAD DIFFICLITY BREATHING OUT. FELT LIKE MY CHEST WAS BEING CRUSHED BY A BOA CONSTRICTER AND PRESSURE FROM THE STOMACH UP TO THE CHEST. WENT TO A NEROLOGIST AND BECAUSE OF NO LESIONS DISMISSED ME OF HAVING MS. PRIMARY DOCTOR SENT ME TO A PULLMONOLOGIST HE DX ME WITH ASTHMA, BECAUSE HE WAS NOT AWARE OF THE MS HUG AND SYMTOMS ARE THE SAME.
DIDN'T KNOW ABOUT THE MS HUG UNTIL THE NEXT EXACERBATION IN 2007 THE MS HUG HAD PROGRESSED SO FAR I WAS HOSPITALIZED BECAUSE THE AIR FLOW WAS BEING RESTRICTED IN MY LUNGS. BY IV WAS TREATED WITH STERIODS AND ANTIBOTICS AND BACOLOFIN. STAYED ON THE BACOLOFIN, THE SYMTOMS STARTED UP AGAIN THE DOCTOR SUGGESTED THAT A FIND A NEOROLOGIST, BUT BEFORE I COULD GET AN APPT. I WAS BACK IN THE HOSPITAL AGAIN WITH THE MS HUG WAS RESTRICTING THE AIR FLOW. WAS DX WITH MS AFTER THE EYE VISION TEST AND A TWO HOUR MUSCLE TEST AND MRI SHOWED NO LESIONS BUT ACTIVITY IN LOWER BRAIN AREA WAS CONCLUSIVE WITH MS. SENT HOME AFTER TWO WEEKS WITH OXYGEN AND STARTED THE BETASORON SHOTS AGAIN AND DYSPORT SHOTS FOR THE MS HUG. THE HUG IS CAUSED BY THE INTERCOSTAL MUSCLES AND WHEN THESE MUSCLE SPASM UP WHICH CAUSES THE MS HUG. HAD I BEEN DX EARLIER I COULD HAVE BEEN TREATED AND THE SYMTOMS WOULD NOT BEEN SO SEVERE.
MY QUESTION TO EVERYONE HAVE YOU BEEN DX WITHOUT LESIONS AND WHO ELSE HAVE TO FIGHT THE MS HUG. THANKS FOR YOUR REPLY
THEN A NEW SYMTOM STARTED, COULD BREATH IN BUT HAD DIFFICLITY BREATHING OUT. FELT LIKE MY CHEST WAS BEING CRUSHED BY A BOA CONSTRICTER AND PRESSURE FROM THE STOMACH UP TO THE CHEST. WENT TO A NEROLOGIST AND BECAUSE OF NO LESIONS DISMISSED ME OF HAVING MS. PRIMARY DOCTOR SENT ME TO A PULLMONOLOGIST HE DX ME WITH ASTHMA, BECAUSE HE WAS NOT AWARE OF THE MS HUG AND SYMTOMS ARE THE SAME.
DIDN'T KNOW ABOUT THE MS HUG UNTIL THE NEXT EXACERBATION IN 2007 THE MS HUG HAD PROGRESSED SO FAR I WAS HOSPITALIZED BECAUSE THE AIR FLOW WAS BEING RESTRICTED IN MY LUNGS. BY IV WAS TREATED WITH STERIODS AND ANTIBOTICS AND BACOLOFIN. STAYED ON THE BACOLOFIN, THE SYMTOMS STARTED UP AGAIN THE DOCTOR SUGGESTED THAT A FIND A NEOROLOGIST, BUT BEFORE I COULD GET AN APPT. I WAS BACK IN THE HOSPITAL AGAIN WITH THE MS HUG WAS RESTRICTING THE AIR FLOW. WAS DX WITH MS AFTER THE EYE VISION TEST AND A TWO HOUR MUSCLE TEST AND MRI SHOWED NO LESIONS BUT ACTIVITY IN LOWER BRAIN AREA WAS CONCLUSIVE WITH MS. SENT HOME AFTER TWO WEEKS WITH OXYGEN AND STARTED THE BETASORON SHOTS AGAIN AND DYSPORT SHOTS FOR THE MS HUG. THE HUG IS CAUSED BY THE INTERCOSTAL MUSCLES AND WHEN THESE MUSCLE SPASM UP WHICH CAUSES THE MS HUG. HAD I BEEN DX EARLIER I COULD HAVE BEEN TREATED AND THE SYMTOMS WOULD NOT BEEN SO SEVERE.
MY QUESTION TO EVERYONE HAVE YOU BEEN DX WITHOUT LESIONS AND WHO ELSE HAVE TO FIGHT THE MS HUG. THANKS FOR YOUR REPLY
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