I did a search and did not find anything (except my own intro message). I would like to share notes with others with CIDS.
To get started - if you have CIDS, have you ever had an MS Hug?
Yesterday, after having had CIDS for 3 yrs and 2 months, I had what I think was an MS hug. I've had pain 24/7 in that area the entire time (severe for the first year; gradually dropping to what is now usually a 3-4 on a scale of 10 on most days). I'd been out in the morning removing non-native invasive plants from a park - something I do every week. I drove home - 30 min. Had some lunch and did some chores - another hour. Then suddenly, out of the blue, my pain shot up fast - very piercing (felt like piercing from the inside) to a 7. It leveled off after about 20 min and after a few hours (on heating pad), it subsided to a 3-4 and has remained there.
So I'm wondering if this was an MS hug and whether anyone else diagnosed with CIDS has had this happen.
Thanks!
To get started - if you have CIDS, have you ever had an MS Hug?
Yesterday, after having had CIDS for 3 yrs and 2 months, I had what I think was an MS hug. I've had pain 24/7 in that area the entire time (severe for the first year; gradually dropping to what is now usually a 3-4 on a scale of 10 on most days). I'd been out in the morning removing non-native invasive plants from a park - something I do every week. I drove home - 30 min. Had some lunch and did some chores - another hour. Then suddenly, out of the blue, my pain shot up fast - very piercing (felt like piercing from the inside) to a 7. It leveled off after about 20 min and after a few hours (on heating pad), it subsided to a 3-4 and has remained there.
So I'm wondering if this was an MS hug and whether anyone else diagnosed with CIDS has had this happen.
Thanks!
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