Hey Folks,
I hope everyone's well. I'm glad to have found a place to learn from others like myself. My case started under worker's comp as a shoulder injury and the case isn't closed as yet, so none of my nuero symptoms can be addressed/diagnosed until the case is closed. I'm not sure if my case is MS but my objective reading brought me here. Here's a brief version of my story...
My condition started at work with intermittent R wrist pain for 2 weeks which ended with the entire R arm feeling like the crushing of a large appliance. It was termed 'repetitive use' injury since my job requires a lot of R hand/arm work. 2-3months later, pain referred to my neck and L arm. This all started in Feb 2019, I eventually started with acupuncture and NSAIDS. More specifically, the combo of gabapentin and flexeril destroyed my stomach by Jan 2020 which brought horrid Gerd/GI upset (slept at 60degree angle, had all kinds of barium swallows and GI ultrasound - sx subsided for most part.) I had 6 PRP (Platelet Replacement something - cognition is atrocious again) to neck and arm with only short term relief. Then onto upper cervical Chiro, which provided 30-70% oscillating relief which saved my life. It felt like I was being beheaded with a dull car - the pain was maddening so I thank God for that lady's work. I saw an chiropractic neurologist who attempted to help also but mostly I learned about Near Infrared light and how it helps with cognition/brainfog. He had amazing tools that I would feel like myself for a day after treatment. I'd also done Thai massage, acupuncture and cognitive behavior/counseling over this time.
I kept up reading about the neurological possibilities but was treating myself symptomatically. In July, I had a laugh that wasn't mine - I learned it was psuedobulbar affect. That explained the previous months' recurring overly emotional states I would get into periodically (writing a Christmas card, anything touch - made me cry easily) At appointments, if I sat bored in a waiting area or patient room I'd laugh like it was an accumulation of every joke I'd ever heard. I loved the endorphin release!! Still do. I prayed for God's healing hand and he'd sent it to me in this form. I can still cry, but I try to get myself out of those situations quickly if I can - they're not fun. However, I sometimes go in and out of laughter and crying too, it's a mind warp but my wife is disturbed most by it as she's kinda on the sensitive side. I was a medic in the Navy so I'm used to dealing with humanity. I haven't had proper meds to help with that, so I've been using self-hypnosis unsuccessfully LOL. I try to let people know in advance of the condition, so they're not offended and I can enjoy the endorphin release - it's all I got, can't really exercise like I used to. If anyone, has questions or tips in coping with PBA please reach out. I'm an open book and love to learn and teach.
Since June, I've felt my symptoms worsening; more general body weakness, widespread and random body aches/spasms throughout my chest, abdomen and even arms or legs when I overuse them, dx w SIBO in Oct, periodic metallic taste in my mouth at night, Hyper sweating of palms and soles of feet - gone now, horrid cognition (since January when GI pains started), headaches. Body weakness (predominantly in all 4 limbs simultaneously) got to a point where I couldn't get out of bed - remedied that with a mitochondrial support supplement but its' benefits waned after 4 weeks. I'm back to using kratom and/or cannabis to get out of bed. I try to hypnotize myself to liken the limb pain to having run/exercised/climbed as that's what it feels like but is challenging to keep up with but not stopping. I started physical therapy for my shoulder a month ago and that's moving ahead well but slowly. Feels great to get more range of motion but paying for it in pain. I'm beginning to work with an Herbalist now to combat the limb pain/weakness. If anyone has used herbal/botanicals, please share your experience.
I know that's a whole mess there for an intro. Despite fighting back with ferocity while living with God, being humble and trying anything for relief, having mostly good PBA episodes, I still feel down sometimes. Like "what's the use" and have negative thoughts as I feel alone and not knowing anyone personally who has the condition or similar that I can confide in. Thanks for having me and helping me, I hope I can be of benefit to someone in need at some point. God bless and let's stay strong together.
Thanks for reading.
I hope everyone's well. I'm glad to have found a place to learn from others like myself. My case started under worker's comp as a shoulder injury and the case isn't closed as yet, so none of my nuero symptoms can be addressed/diagnosed until the case is closed. I'm not sure if my case is MS but my objective reading brought me here. Here's a brief version of my story...
My condition started at work with intermittent R wrist pain for 2 weeks which ended with the entire R arm feeling like the crushing of a large appliance. It was termed 'repetitive use' injury since my job requires a lot of R hand/arm work. 2-3months later, pain referred to my neck and L arm. This all started in Feb 2019, I eventually started with acupuncture and NSAIDS. More specifically, the combo of gabapentin and flexeril destroyed my stomach by Jan 2020 which brought horrid Gerd/GI upset (slept at 60degree angle, had all kinds of barium swallows and GI ultrasound - sx subsided for most part.) I had 6 PRP (Platelet Replacement something - cognition is atrocious again) to neck and arm with only short term relief. Then onto upper cervical Chiro, which provided 30-70% oscillating relief which saved my life. It felt like I was being beheaded with a dull car - the pain was maddening so I thank God for that lady's work. I saw an chiropractic neurologist who attempted to help also but mostly I learned about Near Infrared light and how it helps with cognition/brainfog. He had amazing tools that I would feel like myself for a day after treatment. I'd also done Thai massage, acupuncture and cognitive behavior/counseling over this time.
I kept up reading about the neurological possibilities but was treating myself symptomatically. In July, I had a laugh that wasn't mine - I learned it was psuedobulbar affect. That explained the previous months' recurring overly emotional states I would get into periodically (writing a Christmas card, anything touch - made me cry easily) At appointments, if I sat bored in a waiting area or patient room I'd laugh like it was an accumulation of every joke I'd ever heard. I loved the endorphin release!! Still do. I prayed for God's healing hand and he'd sent it to me in this form. I can still cry, but I try to get myself out of those situations quickly if I can - they're not fun. However, I sometimes go in and out of laughter and crying too, it's a mind warp but my wife is disturbed most by it as she's kinda on the sensitive side. I was a medic in the Navy so I'm used to dealing with humanity. I haven't had proper meds to help with that, so I've been using self-hypnosis unsuccessfully LOL. I try to let people know in advance of the condition, so they're not offended and I can enjoy the endorphin release - it's all I got, can't really exercise like I used to. If anyone, has questions or tips in coping with PBA please reach out. I'm an open book and love to learn and teach.
Since June, I've felt my symptoms worsening; more general body weakness, widespread and random body aches/spasms throughout my chest, abdomen and even arms or legs when I overuse them, dx w SIBO in Oct, periodic metallic taste in my mouth at night, Hyper sweating of palms and soles of feet - gone now, horrid cognition (since January when GI pains started), headaches. Body weakness (predominantly in all 4 limbs simultaneously) got to a point where I couldn't get out of bed - remedied that with a mitochondrial support supplement but its' benefits waned after 4 weeks. I'm back to using kratom and/or cannabis to get out of bed. I try to hypnotize myself to liken the limb pain to having run/exercised/climbed as that's what it feels like but is challenging to keep up with but not stopping. I started physical therapy for my shoulder a month ago and that's moving ahead well but slowly. Feels great to get more range of motion but paying for it in pain. I'm beginning to work with an Herbalist now to combat the limb pain/weakness. If anyone has used herbal/botanicals, please share your experience.
I know that's a whole mess there for an intro. Despite fighting back with ferocity while living with God, being humble and trying anything for relief, having mostly good PBA episodes, I still feel down sometimes. Like "what's the use" and have negative thoughts as I feel alone and not knowing anyone personally who has the condition or similar that I can confide in. Thanks for having me and helping me, I hope I can be of benefit to someone in need at some point. God bless and let's stay strong together.
Thanks for reading.
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