Hello everyone reading this, My name is Jaden, I am a 16 year old with M.S. I was diagnosed 10-11 months ago, My whole left side of my body was numb, and my left eye was extremely blurry, literally nauseating. Had a spinal tap, and an MRI, and I.V. Steroids, and they were 90% sure It was M.S., but since it was my first encounter with the disease, they couldn't OFFICIALLY diagnose me. Fast forward 9 or so months, still have blurry eye, (optic neuritis) though not as bad as before.
Around July 21st I had another flare up, I had my mom take me to the hospital, and yet again, two more MRIs, One of my brain, and one of my spine. They found a few lesions in my brain, but luckily none in my spine. They gave me IV steroids again, but after 4-5 days I went home, ever since that flare up my right wrist strength, and my whole arm coordination is off, I don't really like the term "gamer" but I play games on my PC most of my time, so it's kind of frustrating when games depend on how good your aim is, so I swapped to controller on those games. Also, if I happen to be playing a game with Mouse & Keyboard, say im focused and immersed in the game, the whole arm problem seems to just dissapear! But the second I start thinking about it, the weakness comes back, such as NOW, as I am typing this. Luckily though, it has gotten better from when I went to the hospital.
I am not on meds,(Can't afford them) and I can't get approved for medicade because my mom takes care of my dad who says he's "disabled" but he won't go to the doctor and get an evaluation, for whatever reason nobody knows. My parents aren't even in a relationship anymore, haven't been for years. But until my dad proves he's disabled, I can't get medication to help me.
Welp, that's me :/ Hope to meet new people online and maybe discuss some things as this is all new to me. Thanks.
Around July 21st I had another flare up, I had my mom take me to the hospital, and yet again, two more MRIs, One of my brain, and one of my spine. They found a few lesions in my brain, but luckily none in my spine. They gave me IV steroids again, but after 4-5 days I went home, ever since that flare up my right wrist strength, and my whole arm coordination is off, I don't really like the term "gamer" but I play games on my PC most of my time, so it's kind of frustrating when games depend on how good your aim is, so I swapped to controller on those games. Also, if I happen to be playing a game with Mouse & Keyboard, say im focused and immersed in the game, the whole arm problem seems to just dissapear! But the second I start thinking about it, the weakness comes back, such as NOW, as I am typing this. Luckily though, it has gotten better from when I went to the hospital.
I am not on meds,(Can't afford them) and I can't get approved for medicade because my mom takes care of my dad who says he's "disabled" but he won't go to the doctor and get an evaluation, for whatever reason nobody knows. My parents aren't even in a relationship anymore, haven't been for years. But until my dad proves he's disabled, I can't get medication to help me.
Welp, that's me :/ Hope to meet new people online and maybe discuss some things as this is all new to me. Thanks.
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