it's been a while...time for an update that basically isn't an update
Hello all,
I hope you are all doing well and staying healthy in this storm called COVID-19.
I had my lumbar puncture which came back clear. So far that means I've had:
Blood work that came back fine.
Brain MRI that came back with lesions not typical for MS, but with physical deficits noted by Neurologist, MS cannot be excluded.
Lumbar Puncture that came back normal. (Lumbar was done before MRI/spine after a discussion with my Neurologist)
What this means for me now is that as soon as it is clear for me to do so, I will have the MRI/spine done and if that comes back normal or inconclusive I will be seeing an MS specialist at IU.
In the meantime, things calmed down for a bit and a lot of my symptoms either died off or calmed down to a much milder level of discomfort.
This past week has seen most of them ramp up again including a newer sensation of repeated electrical shocks in my feet and left hand. The muscle weakness is returning to full strength as well.
As far as my eyesight: I don't know whether the first surgeon was competent or not. The second surgeon did feel like the cataract surgery was done too soon, BUT it did enable me to have the floater surgeries which he would not have done had I not had cataract surgery already(getting rid of the floaters was AMAZING and I am glad to have done it.)
Having said that, the double vision and blurriness is what SENT me to the specialists and was not an after-effect of the surgeries. The loss of night vision was the only after-effect.
It's funny because I remember when I was trying to figure out what was wrong with me 7 years ago and they were testing for all sorts of things, I was told it might take years to get a dx. Within 6 months I was dx-ed with Fibromyalgia and started on meds that made a huge difference in my life.
I guess I expected the same thing here because of that situation. It is just so hard to wrap my head around the fact that something that has changed my life entirely could remain in hiding for so long before we know what is causing it.
Hello all,
I hope you are all doing well and staying healthy in this storm called COVID-19.
I had my lumbar puncture which came back clear. So far that means I've had:
Blood work that came back fine.
Brain MRI that came back with lesions not typical for MS, but with physical deficits noted by Neurologist, MS cannot be excluded.
Lumbar Puncture that came back normal. (Lumbar was done before MRI/spine after a discussion with my Neurologist)
What this means for me now is that as soon as it is clear for me to do so, I will have the MRI/spine done and if that comes back normal or inconclusive I will be seeing an MS specialist at IU.
In the meantime, things calmed down for a bit and a lot of my symptoms either died off or calmed down to a much milder level of discomfort.
This past week has seen most of them ramp up again including a newer sensation of repeated electrical shocks in my feet and left hand. The muscle weakness is returning to full strength as well.
As far as my eyesight: I don't know whether the first surgeon was competent or not. The second surgeon did feel like the cataract surgery was done too soon, BUT it did enable me to have the floater surgeries which he would not have done had I not had cataract surgery already(getting rid of the floaters was AMAZING and I am glad to have done it.)
Having said that, the double vision and blurriness is what SENT me to the specialists and was not an after-effect of the surgeries. The loss of night vision was the only after-effect.
It's funny because I remember when I was trying to figure out what was wrong with me 7 years ago and they were testing for all sorts of things, I was told it might take years to get a dx. Within 6 months I was dx-ed with Fibromyalgia and started on meds that made a huge difference in my life.
I guess I expected the same thing here because of that situation. It is just so hard to wrap my head around the fact that something that has changed my life entirely could remain in hiding for so long before we know what is causing it.
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