Good morning. I'm very nearly 60, have been diagnosed for 3 years with RRMS, and currently am on Copaxone 40 mg. I had a neurological "event" (CIS?) over 20 years ago. The neurologist at that time did an MRI and LP to rule out MS or a brain tumor, but said the results were negative. A few symptoms showed up through the years, mainly headaches and deep aching pain in my legs. I was busy with 5 kids and part time work, but did have the leg pain checked into a few times with no answers. A relapse caused me to see my PCP, who ordered an MRI, and that showed multiple lesions. LP still showed no oligoclonal bands.
I finally talked my husband into giving up the 20 acre farm to move to town, and am so grateful to be here now in a one-story house. I'm also grateful for good family and friends, the fact that I was able to raise the kids before this struck so hard, and for my faith. I can still quilt like crazy, do a little gardening, and play piano at church most weeks, and that's wonderful. We have a homely dog, and he forces me to get out and walk most days.
My daughter was recently diagnosed with CMT, and though no one in my family ever mentioned being diagnosed, I have my father's "funny" feet. My daughter's neurologist told her "it's the most common neurological disease that no one has ever heard of." I do see a few threads about others who may have both MS and CMT.
I finally talked my husband into giving up the 20 acre farm to move to town, and am so grateful to be here now in a one-story house. I'm also grateful for good family and friends, the fact that I was able to raise the kids before this struck so hard, and for my faith. I can still quilt like crazy, do a little gardening, and play piano at church most weeks, and that's wonderful. We have a homely dog, and he forces me to get out and walk most days.
My daughter was recently diagnosed with CMT, and though no one in my family ever mentioned being diagnosed, I have my father's "funny" feet. My daughter's neurologist told her "it's the most common neurological disease that no one has ever heard of." I do see a few threads about others who may have both MS and CMT.
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