Hi Rdmc, thank you for your reply.
Some doctors have have told me it was stress related but that was a long time ago. I did suspect they thought I had conversion disorder. But this was also while I was in the middle of a psychotic episode. My psychiatrist who I’ve been seeing for some time told me I definitely don’t have that. So I guess that could be a bit of paranoia.
My previous neurologist thinks I have bppv. And like you, only did 1 15 minute exam and MRIs only on a 1.5 Tesla. My second neurologist was horrible and only did a few tests and said since my MRI was normal that I don’t have MS. My current neuro I have some confidence in. He says it’s at least possible to have a normal MRI although it is unlikely. He is leaving no stone unturned. I have an appointment next week with an ENT, and a 2 hour EEG. He did an MRI of my middle and lower back on a 3T machine. I currently waiting on the results for that.
I have been doing PT for my balance and dizziness which is helping. And he thinks the problem is vestibular but not BPPV.
So far no one has pulled the mental health card on me and they recognize my symptoms as organic but don’t think they are from a single source like MS. My psychologist has been encouraging me to get more answers and even referred me to my current neuro. So I don’t she she would do that if this was “all in my head”.
I should be getting some results from my doctor soon so I will keep everyone posted.
Some doctors have have told me it was stress related but that was a long time ago. I did suspect they thought I had conversion disorder. But this was also while I was in the middle of a psychotic episode. My psychiatrist who I’ve been seeing for some time told me I definitely don’t have that. So I guess that could be a bit of paranoia.
My previous neurologist thinks I have bppv. And like you, only did 1 15 minute exam and MRIs only on a 1.5 Tesla. My second neurologist was horrible and only did a few tests and said since my MRI was normal that I don’t have MS. My current neuro I have some confidence in. He says it’s at least possible to have a normal MRI although it is unlikely. He is leaving no stone unturned. I have an appointment next week with an ENT, and a 2 hour EEG. He did an MRI of my middle and lower back on a 3T machine. I currently waiting on the results for that.
I have been doing PT for my balance and dizziness which is helping. And he thinks the problem is vestibular but not BPPV.
So far no one has pulled the mental health card on me and they recognize my symptoms as organic but don’t think they are from a single source like MS. My psychologist has been encouraging me to get more answers and even referred me to my current neuro. So I don’t she she would do that if this was “all in my head”.
I should be getting some results from my doctor soon so I will keep everyone posted.
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