Is the title of a great tune by "Duke" Ellington which has been covered many times over the years.
I've had the MS beast for more than 20 years and pretty much describes me these days. The other thing I've learned is:
Hope for the best; but prepare for the worst.
My name is Brad and the "1138" part is from the old classic sci-fi movie "THX1138".
I now live in Lexington, Kentucky. I was born and raisedin San Diego and then lived in the SF Bay Area for 20 years. I'm a lawyer by education and trade. Though I have a strong interest in Classical Antiquity and Theology (and two MA degrees to prove it).I've worked as an attorney for state government for many years and thanks to the ADA have been able to work from home mostly for some time.
The first indication something was wrong with me occurred in December 1996 when I developed double vision at work. The doctors initially guessed I had a brain ttumor. An MZRI and and visit to a neurologist confirmed that was not the case. But tthat doctor suggested I might have Multiple Sclerosis but he wasn't certain. The doctor sent me away and said to let him know if I had further problems. I felt fine for years and kept up a busy lawyer's life. Then in about 2003 my walking deteriorated. In 2004 my left hand became partially paralyzed. Stupid me just came up with rationalizations like overwork for pinched nerve. In 2006, after a bout with the flu, the left side of my body became worse. My GP ordered an MR?i: the result: I had MS! I had a visit to a neurologist and started Rebif. mI grew tired of the needles and switched to Gilenya in 2010. I was doing pretty well until 2016 when the spasticity (my main complaint) grew so bad I decided to try a Baclofen Pump. Initally it was a big help. In 2017-2018 I had a series of relapses and now Im in a wheelchair but I can do short distances in a Walker (100 feet or so). I'm now on Ocrevus.
I'm blessed to have a supportive wife and three great kids. I have a strong Catholic faith. In all life is good and I'll be o.k.
God bless all of you at MS WORLD. You are not alone.
I've had the MS beast for more than 20 years and pretty much describes me these days. The other thing I've learned is:
Hope for the best; but prepare for the worst.
My name is Brad and the "1138" part is from the old classic sci-fi movie "THX1138".
I now live in Lexington, Kentucky. I was born and raisedin San Diego and then lived in the SF Bay Area for 20 years. I'm a lawyer by education and trade. Though I have a strong interest in Classical Antiquity and Theology (and two MA degrees to prove it).I've worked as an attorney for state government for many years and thanks to the ADA have been able to work from home mostly for some time.
The first indication something was wrong with me occurred in December 1996 when I developed double vision at work. The doctors initially guessed I had a brain ttumor. An MZRI and and visit to a neurologist confirmed that was not the case. But tthat doctor suggested I might have Multiple Sclerosis but he wasn't certain. The doctor sent me away and said to let him know if I had further problems. I felt fine for years and kept up a busy lawyer's life. Then in about 2003 my walking deteriorated. In 2004 my left hand became partially paralyzed. Stupid me just came up with rationalizations like overwork for pinched nerve. In 2006, after a bout with the flu, the left side of my body became worse. My GP ordered an MR?i: the result: I had MS! I had a visit to a neurologist and started Rebif. mI grew tired of the needles and switched to Gilenya in 2010. I was doing pretty well until 2016 when the spasticity (my main complaint) grew so bad I decided to try a Baclofen Pump. Initally it was a big help. In 2017-2018 I had a series of relapses and now Im in a wheelchair but I can do short distances in a Walker (100 feet or so). I'm now on Ocrevus.
I'm blessed to have a supportive wife and three great kids. I have a strong Catholic faith. In all life is good and I'll be o.k.
God bless all of you at MS WORLD. You are not alone.
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