Hi everyone,
A little bit about myself; Dx with MS in 2010 after a episode of vertigo, dizziness and problems speaking or as my doctor called it "speech arrest." After lots of tests, spinal tap and MRI I was finally dx 3 months later with MS and was told that I probably had it since 2000, but never knew it!
I was given tegretol which immediately cured the "speech arrest" and also started copaxone. I actually read about tegretol in a thread here; I'm so thankful and wish I could remember who wrote about it!
So, the past 8 years have been fairly uneventful. Taking the copaxone and getting yearly MRI's which have always been stable with no changes. Until a month ago when I started having vision problems. I was having some blurry vision and a bit of double vision; so I ran to my optometrist. She checked my optic nerve and said it was 100% fine; but did see some weakness in the muscles on the sides of my eyes. She said to see if it gets better or worse and come back if worse. Of course my neurologist was away so I couldn't see him. The nurse suggested I see an ophthalmologist there instead of my optometrist to get another opinion. He said the same thing. So, back to my optometrist for a third time, she said it's probably Internuclear Opthalmoplesia and she ordered an MRI.
So, I go for the MRI with and without the contrast, and it comes back showing a couple of new, active lesions. This is what's causing my vision problems. I go see my neuro who immediately orders Solu-medrol for 3 days and prednisone for 10 days. He tells me to stop the copaxone, and I'm going to start Tysabri. i went for the blood test for the JC virus, so if it comes back negative, I'll begin the Tysabri asap. I'm on day 2 of the Solu-medrol and am seeing a bit of an improvement.
It's just so upsetting to have been stable for 8 years and then to be hit with this! I'm so glad to have this site to come to; I was on here when I was first dx and then just lurking occasionally. Honestly, it made me upset and scared to read all about the "bad things" and I didn't have much experience to be able to offer advice or help!
Thanks again for this wonderful site :-)
A little bit about myself; Dx with MS in 2010 after a episode of vertigo, dizziness and problems speaking or as my doctor called it "speech arrest." After lots of tests, spinal tap and MRI I was finally dx 3 months later with MS and was told that I probably had it since 2000, but never knew it!
I was given tegretol which immediately cured the "speech arrest" and also started copaxone. I actually read about tegretol in a thread here; I'm so thankful and wish I could remember who wrote about it!
So, the past 8 years have been fairly uneventful. Taking the copaxone and getting yearly MRI's which have always been stable with no changes. Until a month ago when I started having vision problems. I was having some blurry vision and a bit of double vision; so I ran to my optometrist. She checked my optic nerve and said it was 100% fine; but did see some weakness in the muscles on the sides of my eyes. She said to see if it gets better or worse and come back if worse. Of course my neurologist was away so I couldn't see him. The nurse suggested I see an ophthalmologist there instead of my optometrist to get another opinion. He said the same thing. So, back to my optometrist for a third time, she said it's probably Internuclear Opthalmoplesia and she ordered an MRI.
So, I go for the MRI with and without the contrast, and it comes back showing a couple of new, active lesions. This is what's causing my vision problems. I go see my neuro who immediately orders Solu-medrol for 3 days and prednisone for 10 days. He tells me to stop the copaxone, and I'm going to start Tysabri. i went for the blood test for the JC virus, so if it comes back negative, I'll begin the Tysabri asap. I'm on day 2 of the Solu-medrol and am seeing a bit of an improvement.
It's just so upsetting to have been stable for 8 years and then to be hit with this! I'm so glad to have this site to come to; I was on here when I was first dx and then just lurking occasionally. Honestly, it made me upset and scared to read all about the "bad things" and I didn't have much experience to be able to offer advice or help!
Thanks again for this wonderful site :-)
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