I joined this website probably 6ish months ago or more and I never really did anything with it. So i guess this will be my start.
I am 29, a parent of one child age 4, and Married. I was Diagnosed with RRMS September 2017 after a hospital visit caused by what my neurologist says was a relapse. She's not set on RRMS but I do have multiple scars/ lesions that suggest Ive had MS for a while and had multiple Relapses in my life.
I honestly wish there was a way to tell how old the scarring was on my brain so we knew how long I've had MS but the best guess is since 2009-2010 since that's when my first notable symptom occurred and was diagnosed (Hypersomnia) which they have determined is caused or at the very least exacerbated by my MS. Currently I am untreated..
I tried Copaxone when I first got my diagnosis, but couldn't function as the side effects were more debilitating than my MS seemed to be. I have opted temporarily out of other medications due to also being JC positive with high levels and not wanting to risk PML the only medications left outside of copaxone wouldn't allow me to conceive one more child. My spouse and I plan on revisiting the medication options after we have our second child in the next year or so.
I am aware of the risks but at this point I'm rather stubborn and potentially depression could be clouding my judgment. I just greatly dislike how all the disease controlling medications seem to make me feel worse or can kill me. I always thought Finally knowing whats wrong with me would solve a lot of problems but now it feels like it's just made me aware of how hopeless my life actually is.
Id like to enjoy what little quality life I have left before giving completely. I feel like my opinions would differ had doctors actually diagnosed me earlier in life instead of ignoring my health issues up until I had a severely hard to ignore symptom occur. But as it stands, I have hypersomnia, Vertigo, fully body fatigue, vision loss, mood disorder, Depression, Anxiety, aphasia, and various muscular skeletal disorders that make functioning in any capacity extremely painful. All of these issues Ive gradually developed over the last 10 years, Vertigo and Aphasia being the most recent.
Thank god for spell check and people to proof read otherwise i fear this entire post would be an incomprehensible mess. I haven't fully come to terms with everything and Depression has taken a hold of me pretty hard, main reason why This is my first post. and I am proboaly doing it wrong, so apologies there.
How about some good things, Despite my issues I still enjoy being out in nature, gardening, being a parent, having pets, art, crafts, playing games, reading, and cooking.. and I attempt all of these with the aid of my friends and family.
I guess if there is anything I left out that should have been in this post, feel free to ask me?
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
I am 29, a parent of one child age 4, and Married. I was Diagnosed with RRMS September 2017 after a hospital visit caused by what my neurologist says was a relapse. She's not set on RRMS but I do have multiple scars/ lesions that suggest Ive had MS for a while and had multiple Relapses in my life.
I honestly wish there was a way to tell how old the scarring was on my brain so we knew how long I've had MS but the best guess is since 2009-2010 since that's when my first notable symptom occurred and was diagnosed (Hypersomnia) which they have determined is caused or at the very least exacerbated by my MS. Currently I am untreated..
I tried Copaxone when I first got my diagnosis, but couldn't function as the side effects were more debilitating than my MS seemed to be. I have opted temporarily out of other medications due to also being JC positive with high levels and not wanting to risk PML the only medications left outside of copaxone wouldn't allow me to conceive one more child. My spouse and I plan on revisiting the medication options after we have our second child in the next year or so.
I am aware of the risks but at this point I'm rather stubborn and potentially depression could be clouding my judgment. I just greatly dislike how all the disease controlling medications seem to make me feel worse or can kill me. I always thought Finally knowing whats wrong with me would solve a lot of problems but now it feels like it's just made me aware of how hopeless my life actually is.
Id like to enjoy what little quality life I have left before giving completely. I feel like my opinions would differ had doctors actually diagnosed me earlier in life instead of ignoring my health issues up until I had a severely hard to ignore symptom occur. But as it stands, I have hypersomnia, Vertigo, fully body fatigue, vision loss, mood disorder, Depression, Anxiety, aphasia, and various muscular skeletal disorders that make functioning in any capacity extremely painful. All of these issues Ive gradually developed over the last 10 years, Vertigo and Aphasia being the most recent.
Thank god for spell check and people to proof read otherwise i fear this entire post would be an incomprehensible mess. I haven't fully come to terms with everything and Depression has taken a hold of me pretty hard, main reason why This is my first post. and I am proboaly doing it wrong, so apologies there.
How about some good things, Despite my issues I still enjoy being out in nature, gardening, being a parent, having pets, art, crafts, playing games, reading, and cooking.. and I attempt all of these with the aid of my friends and family.
I guess if there is anything I left out that should have been in this post, feel free to ask me?
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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