Newly Diagnosed

[disston45]

I have a question for everyone. I was diagnosed with MS in March of 2010. I do not understand why I have so many symptoms everyday. I've read about other people with MS and many have their symptoms go away for a while.

I am still waiting for that to happen. Since the diagnosis, I have had two occasions with an almost three day period without symptoms. It's frustrating and discouraging.

Can anyone relate?

[miguel]

I can relate!

I was diagnosed in April of this year and it seems that I'm feeling new symptoms everyday. Maybe I'm just more aware of my condition, that I'm properly understanding what my body is going through.

I understand your frustration.

[KoKo]

Hello Disston

Welcome to the MS World Forums - nice to meet you!

Were you diagnosed with Relapsing Remitting MS? Even so, some symptoms may not resolve completely after a relapse.

I have PPMS, and once my symptoms came on, they haven't gone away. For instance, I started with limping on my right leg, then dragging my right leg, then foot drop, and now it's quite difficult to move my right leg (when walking I use my back and ab muscles to swing my leg forward from the hip).

Some of my other symptoms show up more when I'm overheated, either by a fever, overexertion, or warm air temperature. Then when I cool down some of these symptoms lessen.

May I ask what type of symptoms you are having every day? It could be from a relapse that left recurring deficits.

Also I'm wondering if you have mentioned these symptoms to your neuro. It's wise to keep a list of all your symptoms and take it to your next appointment.

And yes, I agree that MS stuff is frustrating and discouraging. But try not to give up hope for better days ahead. This might be a temporary flare you're going through. Also, some of our members have had steroid treatments to shorten the inflammation period.

Wishing you the best - keep us informed on how you're doing. This is a wonderful place with supportive and encouraging members.

Take care,
KoKo

[cocogirl]

During the first 2 years after diagnosis it seemed that I had sxs piled upon sxs. I had more bad days than good. I have read that this sometimes is the case and I still can't figure out why.

Keep in touch here and just vent when you feel like it. Maybe you can give us some input too.

[disston45]

To Koko

I was diagnosed with MS in March of 2010 but they don't know what type of MS yet. My symptoms started with numbness and weakness on my left side and optic neuritis in both eyes. Following that, I developed numbness and weakness in my right side. The sensation has not returned in my left side except for a very short time period during steroid treatment. My vision cleared up after two rounds of IV Solumedrol. The sensation in the right side is intermittent. I limp and one foot drags so much that I have a sore on the bottom of my foot. Other symptoms are extreme fatigue and spasticity. I take Baclofen 4 times a day now and it is helping. My neurologist is an MS specialist and we have an MS nurse available 24 hours a day. They are aware of what is going on and are very supportive. It is nice to be able to talk to other people who have MS. Thank you for your comment.

[KoKo]

Hi Disston

I was diagnosed with MS in March of 2010 but they don't know what type of MS yet.

Ok, thanks for sharing that. Often it takes time for the neuro to diagnose the type of MS, especially when some symptoms resolve, and other symptoms seem to be worsening.

My neurologist is an MS specialist and we have an MS nurse available 24 hours a day. They are aware of what is going on and are very supportive

Sounds like you are being followed well, and are in good hands.

Even with RRMS, fatigue can be a constant companion, with better days than others. And other symptoms may take awhile to resolve, or not resolve completely. So I guess time will tell.....

Wishing you all the best

Take care,
KoKo