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    Hello! I'm new here

    Hello everyone,

    I'm new here as of January. I've been looking for a place to connect with other optimistic people that have MS. My first MRI I had 18 years ago showed a few lesions on my brain and spinal cord. After 2 years of treatment with a naturopath and trying alternative healing modalities and making some lifestyle changes, my repeat MRI had no new lesions so I continued on my healing journey without having any future MRI's nor medication. I have had what I guess would be considered relapses over the years but they didn't persist like my first one did so I pushed through them without seeing a neurologist. After an exacerbation last year that has caused a significant decline in my cognitive function and more chronic symptoms, I have decided to try Copaxone.

    I am trying to learn more about MS as there is much more information than there was in 1998, to understand what is within my power to manage and improve in my health, and what I need to accept as my new normal. So, here I am reading the posts of many others to understand how it manifests in your life. In doing so, I hope I can be more understanding of what is happening in my body presently and have more compassion for myself.

    Thank you for this forum that allows me to connect with all of you!


    [COLOR=NAVY]** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print.**

    #2
    Hi and welcome! I'm not a particularly "optimistic member" but I thought I'd welcome you to our group. This is a nice group of people all dealing the best we can with this miserable disease.

    Best wishes.
    He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
    Anonymous

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      #3
      Hi solaceseeker,
      Welcome to a great board!
      I was dx in 1988. For 13 1/2 years I did healing prayer and meditation-it kept ms at bay. I got cocky and stopped it didn't take long for sx to start my dr got me on Copaxone about 1 1/2 yrs later. I was on it for 2 1/2 years it did nothing for me except increase my lesion load and my sx got worse In 2006 a ms specialist (she specialized in only what she chose) got me on Tysabri. What a blessing for me-stopped progression, abated some sx and my MRIs showed NO new or active lesions and some of the old got smaller or went away I have QOL.

      I absolutely believe in positive thinking I may have ms but, it does NOT have me!! I do what I want when I want. Thank G-d and Tysabri

      Good luck and best wishes
      Linda

      Comment


        #4
        Originally posted by Jules A View Post
        Hi and welcome! I'm not a particularly "optimistic member" but I thought I'd welcome you to our group. This is a nice group of people all dealing the best we can with this miserable disease.

        Best wishes.
        Thank you for acknowledging my post Jules. I'm not always optimistic but I certainly am inspired and hopeful by those that are!

        Comment


          #5
          Originally posted by lindaincolorado View Post
          Hi solaceseeker,
          Welcome to a great board!
          I was dx in 1988. For 13 1/2 years I did healing prayer and meditation-it kept ms at bay. I got cocky and stopped it didn't take long for sx to start my dr got me on Copaxone about 1 1/2 yrs later. I was on it for 2 1/2 years it did nothing for me except increase my lesion load and my sx got worse In 2006 a ms specialist (she specialized in only what she chose) got me on Tysabri. What a blessing for me-stopped progression, abated some sx and my MRIs showed NO new or active lesions and some of the old got smaller or went away I have QOL.

          I absolutely believe in positive thinking I may have ms but, it does NOT have me!! I do what I want when I want. Thank G-d and Tysabri

          Good luck and best wishes

          Hi Linda.
          Thanks for welcome here. I'm looking forward to getting to know more of you here. I seem to have become more symptomatic since I started the Copaxone. I'm not sure if it's the medicine or just a coincidence. I'm giving it some time to see how things do or don't progress. I'm not a huge fan of pharmaceutical medications but decided to try this one first because of the minimal side effects. My recent MRI's didn't show any new lesions so I'm not sure if I even need to be on medication now. Time will tell.

          Take Care

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