Hello everyone.
My name is Chase. I am new around here. I am thinking my diagnosis will be coming soon. About 5 years ago I had a funny feeling on the tips of my right fingers. I cant explain it too well. It was not tingly, just an odd feeling. I went to my gp and he sent me for my first ever MRI of the brain. I got a call that night that they found something there that looked like a low grade tumor. Over the next two weeks the feeling moved all the way up my arm and my fine motor skills were not working. I couldnt hold a spoon, or a pencil. I couldnt type or write very easily with my right hand. After seeing a neurosurgeon, I was told it was one of three things, a tumor, an infection, or MS. After a few more MRIs over the next 6 weeks to a half year, the spot shrunk and went inactive. During the time of the spot shrinking I was released from seeing the neurosurgeon and sent to an MS neurologist and told it was not a tumor. I was never diagnosed back then because my symptom went completely away and the spot went inactive and no other lesions or signs showing.
Fast forward to a month ago. On December 25th, I was out shoveling my driveway. After I was done I went to bed. I felt my right foot near the top start to tingle. I thought it had just gone to sleep or something, but it moved all the way down my foot to where it was all tingling on the bottom. It them also moved into my left foot and was not going away. After a few days, it turned into the bottom of my feet feeling swollen as if I was standing on bumpy ground. My feet were not swollen however. That lasted about two weeks. Now I am left with this feeling that when I look down I get tingling, as if my phone is buzzing, down the lower part of my back, my behind, and parts of my legs, which dissipates if I look down for a few seconds. Though the buzzing has also been there when not looking down, it is not always there. It gets better at night to where I think the symptom has gone, but the next day I find out it is still there.
I had an MRI of the spine and brain the other day, and am waiting to see my doctor. I dont have one currently, i had to transfer to a new one since my insurance has changed. That has been another fun thing. I read the results and no lesions were found on the spine, nor signs of demyelination on the spine. However there are now two lesions that show in my brain. One is the old one from 5 years ago. One of the lesions suggests axonal loss. These are the findings:
"Prominent FLAIR signal abnormalities in the left periventricular corona radiata and left anterior temporal lobe compatible with a demyelinating process. No evidence of enhancement."
Anyone here gone through anything similar? I still have the symptom when looking down my lower half buzzes. But a demyelinating process and the symptoms I am having, I am guessing will lead to my diagnosis when I do go into see my new doctor
Hope all is well with everyone. Thanks for reading
-Chase
My name is Chase. I am new around here. I am thinking my diagnosis will be coming soon. About 5 years ago I had a funny feeling on the tips of my right fingers. I cant explain it too well. It was not tingly, just an odd feeling. I went to my gp and he sent me for my first ever MRI of the brain. I got a call that night that they found something there that looked like a low grade tumor. Over the next two weeks the feeling moved all the way up my arm and my fine motor skills were not working. I couldnt hold a spoon, or a pencil. I couldnt type or write very easily with my right hand. After seeing a neurosurgeon, I was told it was one of three things, a tumor, an infection, or MS. After a few more MRIs over the next 6 weeks to a half year, the spot shrunk and went inactive. During the time of the spot shrinking I was released from seeing the neurosurgeon and sent to an MS neurologist and told it was not a tumor. I was never diagnosed back then because my symptom went completely away and the spot went inactive and no other lesions or signs showing.
Fast forward to a month ago. On December 25th, I was out shoveling my driveway. After I was done I went to bed. I felt my right foot near the top start to tingle. I thought it had just gone to sleep or something, but it moved all the way down my foot to where it was all tingling on the bottom. It them also moved into my left foot and was not going away. After a few days, it turned into the bottom of my feet feeling swollen as if I was standing on bumpy ground. My feet were not swollen however. That lasted about two weeks. Now I am left with this feeling that when I look down I get tingling, as if my phone is buzzing, down the lower part of my back, my behind, and parts of my legs, which dissipates if I look down for a few seconds. Though the buzzing has also been there when not looking down, it is not always there. It gets better at night to where I think the symptom has gone, but the next day I find out it is still there.
I had an MRI of the spine and brain the other day, and am waiting to see my doctor. I dont have one currently, i had to transfer to a new one since my insurance has changed. That has been another fun thing. I read the results and no lesions were found on the spine, nor signs of demyelination on the spine. However there are now two lesions that show in my brain. One is the old one from 5 years ago. One of the lesions suggests axonal loss. These are the findings:
"Prominent FLAIR signal abnormalities in the left periventricular corona radiata and left anterior temporal lobe compatible with a demyelinating process. No evidence of enhancement."
Anyone here gone through anything similar? I still have the symptom when looking down my lower half buzzes. But a demyelinating process and the symptoms I am having, I am guessing will lead to my diagnosis when I do go into see my new doctor
Hope all is well with everyone. Thanks for reading
-Chase
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