Hello,
I am new here and have been researching for a while now trying to come up with answers. Maybe someone here can shed some light and offer up some ideas.
It all started about 5 years ago. I was having muscle twitches throughout my body. Random, twitch here, twitch there. Fast forward about a year ago, and my right eye twitched for nearly 7 months, intermittently throughout the day, left as fast as it came.
Now, around 10/22/15 I was having a stressful day at work and got really fatigued and shaky. The next day I woke up to my right foot feeling strange as if I was walking on sand, by the next day it hit my left foot, gradually climbing my body. It concerned me enough that I went to the emergency room, pcp, and they all concluded...NOTHING.
So I ask for a neuro appointment. Which I got. So, I presented to the neurologist about 2 weeks post onset of symptoms. This was on a Friday. He checked my reflexes, present and strong, but not hyper, that I could tell. Strength NEVER lost. He said he believed I had a nickles worth of guillan barre bc,of symmetry of sx and onset. His orders were to come back Monday for nerve test.
I did, and the nerve test showed no signs of polyneuropathy as in gbs, they were clean. He scratched his head and said I will see you back in 4 weeks. After, leaving his office a week or so later I noticed my abdomen feeling like wool, then a band sensation. By this time my legs were back to normal. Oh and i must mention my saddle area was numb off and on for about a week with the initial start of this all. That subsided fairly fast. 4 weeks rolls around and I see him again. Reflexes the same, no loss of reflexes, nerve test great...so, now he wants an mri. He is looking for inflammation in thoracic spine. He said sometimes inflammation can cause these sx, and spine issues won't show on nerve test. He is looking for a disc issue as well. Is there anyone out there that may have some clues to what this may be?
No pain ever, no preceding illness that would suggest gbs, no weakness, healing started where the deficit started, worked it's way to abdomen just below chest and stopped, no strong loss of sensation...feels like wool on my skin, temperature sensation and pain sensation intact. Nerve test clean 2 weeks post sx,. No loss of limb location, no burning sensation. But i will add that I felt a tingle or buzz in right upper thigh then in left upper thigh in two places. As strange as this sounds it tingled/buzzed in a sequence! That lasted maybe ten minutes.
Thank for reading such a long, first post. Just looking for more insight!
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print.
Also, moved from General Questions and Answers forum to Tell Us About Yourself forum.**
I am new here and have been researching for a while now trying to come up with answers. Maybe someone here can shed some light and offer up some ideas.
It all started about 5 years ago. I was having muscle twitches throughout my body. Random, twitch here, twitch there. Fast forward about a year ago, and my right eye twitched for nearly 7 months, intermittently throughout the day, left as fast as it came.
Now, around 10/22/15 I was having a stressful day at work and got really fatigued and shaky. The next day I woke up to my right foot feeling strange as if I was walking on sand, by the next day it hit my left foot, gradually climbing my body. It concerned me enough that I went to the emergency room, pcp, and they all concluded...NOTHING.
So I ask for a neuro appointment. Which I got. So, I presented to the neurologist about 2 weeks post onset of symptoms. This was on a Friday. He checked my reflexes, present and strong, but not hyper, that I could tell. Strength NEVER lost. He said he believed I had a nickles worth of guillan barre bc,of symmetry of sx and onset. His orders were to come back Monday for nerve test.
I did, and the nerve test showed no signs of polyneuropathy as in gbs, they were clean. He scratched his head and said I will see you back in 4 weeks. After, leaving his office a week or so later I noticed my abdomen feeling like wool, then a band sensation. By this time my legs were back to normal. Oh and i must mention my saddle area was numb off and on for about a week with the initial start of this all. That subsided fairly fast. 4 weeks rolls around and I see him again. Reflexes the same, no loss of reflexes, nerve test great...so, now he wants an mri. He is looking for inflammation in thoracic spine. He said sometimes inflammation can cause these sx, and spine issues won't show on nerve test. He is looking for a disc issue as well. Is there anyone out there that may have some clues to what this may be?
No pain ever, no preceding illness that would suggest gbs, no weakness, healing started where the deficit started, worked it's way to abdomen just below chest and stopped, no strong loss of sensation...feels like wool on my skin, temperature sensation and pain sensation intact. Nerve test clean 2 weeks post sx,. No loss of limb location, no burning sensation. But i will add that I felt a tingle or buzz in right upper thigh then in left upper thigh in two places. As strange as this sounds it tingled/buzzed in a sequence! That lasted maybe ten minutes.
Thank for reading such a long, first post. Just looking for more insight!
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print.
Also, moved from General Questions and Answers forum to Tell Us About Yourself forum.**
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